@18 month wait for appointment is just too long! When my MRI scan showed that B cell therapy is not helping my MS, they recommended that Tysabri or Stem Cell therapy would be better. I was excited, after saying for years that Ocrevus, then Kesimpta wasn’t helping & my walking was getting worse. Then they gave me an appointment in 18 months from now to discuss this! I am so angry at the NHS just now! Their waiting list culture and excuses is just not acceptable any more! on Shift.ms

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18 month wait for appointment is just too long! When my MRI scan showed that B cell therapy is not helping my MS, they recommended that Tysabri or Stem Cell therapy would be better. I was excited, after saying for years that Ocrevus, then Kesimpta wasn’t helping & my walking was getting worse. Then they gave me an appointment in 18 months from now to discuss this! I am so angry at the NHS just now! Their waiting list culture and excuses is just not acceptable any more!

First posted on the Shift.ms app

@welshcake

That is ridiculous! Doesn't help that they start strike action today for over a week. That's not going to help waiting lists.

7 Apr 2026 06:50