New here! Really need some friends in the MS community!
Hi everyone! I am new to this space and have really needed some friends from the MS community. Do you ever feel like you try to explain symptoms or your lived experience and even those closest to you just cannot understand? Despite the love and care of people in my life, it can sure be a lonely road at times. Anyone else know the feeling?
Hey! I completely know the feeling, it's hard enough to try to explain it to your loved ones, especially when you can't seem to get the words out and are stuttering along with it. All being said, you have this community here to support you all the way!
Yes I find it is difficult for my family to fully understand my MS which is understandable and I don’t want to offload onto them or upset them. For example, sometimes I struggle with my speech - when I am speaking to someone it might be fine but when I have to concentrate and read something out, I struggle. MS is such a strange illness! If I’m doing something I enjoy, it helps with my symptoms. Perhaps there may be some MS support groups near you? It has really helped me to meet other people with MS and share experiences. I was diagnosed in 2020 too - wasn’t that fun, being diagnosed during the Covid pandemic?! It felt so isolating but I have found the support groups have helped me.