Good morning wherever you are folks. I was talking to my mum and we realised it's been 6 years since she's seen a neurologist. She's had the odd call from an MS nurse and from listening in, they tend to just gossip, not really talking about MS, which is fine, I guess. I was just wondering how often you good people get appointments to see your specialists? I guess it will vary depending on how your condition is and what kind of treatments you're on! For a bit of context, my mum has PPMS, she was diagnosed around 2004, having symptoms a good few years before diagnosis. No treatments or plans in place for her. We just kinda feel forgotten! I know there isn't much they can do but, it would be nice to see a specialist at least once a year or so. Her condition is worsening as the years go by, her swallowing and talking is deteriorating, she has no balance and her waterworks are terrible. I sent an email to her GP this morning, CC'd in PALs and care watch in the Bradford area, so hopefully we'll get a call in the next day or so. I really want them to see her and address the swallowing and talking problems, maybe even offer some physio sessions. We feel there is more they can do to help and feel it's a bit silly that we haven't had an appointment in so long 🙄 Do you feel you have to be more proactive in getting your needs met?