Evening all
I'm feeling pretty useless and an overall burden on my wife. I don't work and haven't since I got medically discharged from the army about two years ago due to a spinal injury while serving. Since then I got my diagnosis for MS and my mobility and pain have gotten worse.
On top of that I've had nerve damage to one eye through optic neuritis so I struggle focusing on screens for too long, restless leg syndrome which causes fatigue, instability, falls and additional pain to my back as well as lack of sleep. Also not allowed to drive anymore and have memory problems diagnosed by the memory clinic.
I have 4 young children and am still in the process of waiting for PIP to the point where they have said I don't qualify twice and we are waiting on a court date (RBL assistanting with this). It's safe to say we are not in a financially stable situation because of this.
I feel like I am a complete burden on my family. I can't play easily with my children and my wife has to do a lot of the things around the house. I do what I can but I'm feeling more and more like it's not enough.
What do I even do? I'm under all of the professional people I think I can possibly be under but I'm sort of feeling at a complete loss right now and it only seems to be getting worse.
Sorry to bother you all 😅
Hello! I can’t offer you advice but maybe insight. I have been recently diagnosed (so still figuring out that and very emotional) but my mum was diagnosed around the time I was born. She couldn’t work, help physically around the house or easily play with us - there are 5 of us kids. But none of that mattered, we loved her more than anything in the world and understood that it wasn’t because she didn’t want to help or play. From a very young age we had to help her and it made us all much better people in the long run. So, what I’m trying to say is try not to be too hard on yourself, those that love you will love you no matter what! You are not a burden! X
I am basically a milder version of you. I struggle mentally with the patients and physically to get down on my knees to play with my young children. I try and do jobs around the house the time comfortable with like laundry washing up cooking DIY and school runs. This means I don't feel guilty when my wife plays with the children gives them their baths puts them to bed etc.