Any advice?
I've seen stories about other people who have gotten diagnosed at a young age, but do any of you have advice for it? I've spent the last 5 years going from Dr to Dr in multiple different states to find out what was wrong as my health was rapidly declining and only recently (last August) found out I have many (17 minimum) lesions and only in April getting told firmly that I HAVE MS (all the other Drs since August being washy "well, it SEEMS like you have MS but we cant tell for certain") and my current PCP is amazing, she's doing everything she can to figure out EVERYTHING and ANYTHING else going on to get me the best treatment but i can't help but be scared. since the first MRI in August, I had a second MRI last month and it's already progressed. Which, I figured. But just in the last 2 years my health has gotten so much worse and I feel so helpless and scared. I just turned 25 in November and I've been using a cane since 2023. I just want to know if any one who has had their diagnosis longer has any advice on handling the fear? I just can't stop thinking that I'll never be as healthy as I used to be but this is probably the healthiest I'll ever be again
It can be really scary at the start. Main thing here is no you know what's going on and it's not a mystery. As I'm sure many people will tell you it's different for all of us. Hopefully your Dr's will get you on some medication soon to slow the progression. Life will definitely be different but that won't always be bad, for example my brother has secondary progressive and is in a chair, but does so much! He coaches and plays wheelchair basketball, is in the gym most days and is always somewhere doing something. Take each day as it comes and use this group for support as well. Ask as many questions as you want there are people here from accross the globe happy to talk to you. You aren't alone and with being young you'll likely respond well to treatment plus your body will be able to reroute and repair a little at this point. Also keep your Dr's updated with anything that goes on big or small, I'm just giving general ideas but they will know much more obviously 🙂
Spinal taps are the confirmation 🤔🙂