Ms
I've been diagnosed since 6th June 2023.
Found out because of an accident that happened when me and my then 2 year old was playing a game. He headbutted me directly on my nose/between my eyes. I then started getting tingles in my face, my head and all down my right side. Led to several MRIs and there we have it.. Ms
Now all my body tingles and has a numbness too it. Luckily doesn't effect me doing day to day things generally but occasionally I can't feel when I'm holding something and tend to drop it. Get sharp pains in my hand and have pins and needles all the time in my hands. Including whilst typing this.
There's been other issues, pain in pelvis, spasms in feet, sharp pains from my bum all the way down my legs.
I cried a little when I found out, But mainly I'm always the one telling people .. its OK, I'm OK, everything is fine and I'm still the same person! Nothing has changed. Honestly I can't really say how I feel because I have no idea. I'm telling everyone it's fine bit is it? Am I?
Yes I have ms but does or should that change me. I'm working and picking up extra hours, doing more things just to prove I can. I'm exhausted all the time, I'm in pain constantly.. I slow down but then it hurts more to move. If I sit for too long it's more painful for me when I do try and do things.. is that normal? You'd think resting would help.
Sorry this is one big long mess of a post. I think I'm just confused about how I'm meant to feel.
I have very active rrms. They started me on ocrevus as I'd had four new lesions within 11 months. Waiting on my next mri.
Just to say, I empathise with how you’re feeling and that lack of certainty in regards to where you’re actually at with your diagnosis, how you’re processing it (or not), etc. I’d suggest there’s no right or wrong way to feel. However, I’d ask - do you feel you given yourself time to actually sit with the reality of your diagnosis and start absorbing it and examining how you’re feeling mentally/emotionally? It sounds like you’ve been pushing through a lot - which I totally get - but it might not be the best option in the long run. I also can really relate to telling everyone ‘I’m ok!’ - we don’t want them to worry. If it’s hard to open up to friends or family, I’d really recommend some counselling sessions if you can access them - I found that SO invaluable in the year or so following my diagnosis. Just to talk through it all. Take care 🧡
All this feeling are normal, please change your diet quickly as as possible , to avoid strange symptoms everyday. Personally I used healing Ms written by Ann borroch and you can read part 3 and 4and follow instructions. Or you find the book: the wahls protocol, read it and follow instructions. I will also post few videos, listen to them, they will help you