Side effects of medication
I was on Kesimpta for about 9 months. It wasn’t working so my doctor switched me to Mavenclad a month ago. I am not sure if the things I’m experiencing are related to the medication or just my MS.
I had some issues when I stopped the Kesimpta. My body was confused not having it. But now I feel the worst I’ve ever felt with my MS. I’m so much more fatigued than I have been in the last year. I feel dizzy sometimes and get brain fog. I can tell my energy is low. I’m not sleeping well at all. My heart rate has been elevated for weeks according to my technology aids. I just can’t rest enough. I don’t know what to do. Work is a struggle and all I do is sit at a desk. I’m having more pain too.
I’m not sure if anyone has experienced this coming off Kesimpta or going on Mavenclad. Please let me know your experience with either one.
This is one reason why i have chosen no DMT. MS will be a rollercoaster of feelings, physical and emotional. I feel if i’m not on any rx drug then i know for certain how the disease is really affecting me. All of my treatment comes from myself. The only neurologist i have seen pushed drugs on me and when i attempted to communicate my feelings and ask questions he dropped me as a patient.
I was on Kesimpta for about 2 years, then insurance got weird and kept putting on, then off, then on, then off. I finally made them stop the games, as it was really messing with my body. I haven’t been on one DMT since the last Kesimpta dose in September 2025. Now? I can only stay out of bed for 6-8 hours before I am completely wiped out. I have to find a new neurologist, before I can get another DMT, I guess? Just not sure if I want to? Hmm 🤔