Telling children.
Hi everyone
Just looking to see what advice there is/others have done in regards to telling children about their MS. I have RRMS and have for years now, our five year old is getting to a stage where she is naturally curious about everything. I’ve recently changed to Kesimpta having previously had Alemtuzumab so it feels that MS is a bit more prevalent in the house and it’s only a matter of time until the question comes about what the injection is for.
My concern is essentially that I don’t want to worry them, but I don’t want to hide it from her if she asks.
Thanks for reading!
Hi there, my little girl has just turned seven. I haven't explained about my MS (RR) as if grown-up don't get it, how can she. She just knows sometimes Mommy has jelly legs and so it's a snuggle up and watch a film or let's do some crafting or gardening. I'm on Kesimpta and have the sharps box hidden on the top shelf of my wardrobe and tend to inject at night just before bed so she's fast asleep. Not sure if any of what works for me will work for you but best of luck x
Hi, sorry no advice just to say am in a similar position, I have two children, 7 and 5 and they are starting to realise when mummy feels unwell ‘again’. I too don’t want to worry them unnecessarily so sometimes we just take things slowly, watch a film and I try and mask as much as I can from them. Daddy is very good at taking over at that point so I’m lucky to have that support.