Positive vibes 😀
Hi,
I was diagnose over 15 years ago (I’m 43) and obviously in that time my MS has developed from being almost totally ignorable to something I have to think about every second of the day however….i try to live as I always have (within reason), continue to do the things I enjoy with adaptions or variations where necessary and like to remained positive. Just lately I’ve become aware that I don’t know anyone else in my situation and anyone I know with a chronic disease tends to be (understandably) fairly negative where I like to adapt and try to stay ‘glass half full’.
So, anyone in a similar situation, having lived with MS for a long time and trying to make the best of life give me a shout! X
Hi I’ve only just been diagnosed so at the opposite end to your journey. However although I have no symptoms and the ms is apparently “ mild “ my mental thoughts have plummeted into a pit of doom . My mind set it totally screwed and all I can think about is the what ifs and OMG WTF! I went down the hole of it’s a death sentence or I’m gonna be crippled . Hightened moreso as I lost my dad 4 yrs ago to a brain bleed ….. brain ! Now my brain . I can’t process any positives . Looking at posts like these seeing how people have had it for many years sort of gives me hope that I really ain’t gonna die 🫣. I’m due to start Kesimpta soon , how do you find it ? Just can’t get out my head atm x
I was diagnosed in 2004 so over 20 years. For the first 15 nobody knew but it's obvious now. I have made adaptations too and put rest timed into my day. I try not to.moan about it ( only to myself) as it can always be worse. I live in Yorkshire and have now made myself a member of our local MS group. Up till then I didn't know anyone either and didn't want to be surrounded in negativety but it's not like that thankfully