@Dashia 

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Dashia

Pain management taking a toll

It’s been overwhelming from the very beginning. I found out I had lesions in my brain and spine, and before I could even catch my breath, they started me on Tysabri. Everything happened so fast that I never got a moment to process what was really going on with my body or my life. One day I thought I was just tired and stressed… the next, my whole world changed. Tysabri is supposed to help stop more lesions from forming, but it doesn’t take away the pain I live with every day. So now I’m on separate medications just to manage the pain — and none of them really work. It’s frustrating feeling like you’re doing everything you’re supposed to do, taking all the right steps, and still hurting. Some days it feels like I’m trapped in a body I don’t recognize. I’m trying to keep up, trying to stay strong, trying to adjust to a life I never asked for. But the truth is, it’s exhausting. It’s lonely. And it’s scary watching your life move faster than you can emotionally keep up with. But even in all of this, I’m still here. I’m still fighting. I’m still trying to find myself in the middle of a diagnosis that came out of nowhere and changed everything. And that alone takes more strength than anyone realizes.
@BarbaraMask

I understand what your going thru. I wasn't prepared to the speed it took to disable my body. However..with a much needed ms support group..I learned to become a fighter. I have ms BUT ms doesn't have me. I became a advocate..learned all I could..helped people that had loved ones newly diagnosed with the disease. I never quit fighting. Just remember your not alone. We are ALL fighting "with" you. Need a ear..I am always here for you. Barb

@Dashia

l’m really glad you reached out. I just need an outlet — this is heavy, life-changing, and I feel like no one understands the toll it’s having on me and my body.