@ChloeAlexandraa 

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ChloeAlexandraa

Ocrevus side effects

Hi all I had my first half dose of ocrevus on Thursday. I had a reaction during administration. Once it got up to 120 the skin on my face went red and I got an itchy rash. Also got a temperature. We had to stop the infusion for 30 minutes and they restart slower, not going above 120. I've slept and rested since letting my fiancé look after me, I was very aware of my heart beat When I got home. When I woke up Friday morning my eyes were swollen, I had eye pain mostly in my left eye and blurred vision, this faded to normal during the day. I've had alot of fatigue and have slept on and off. I've had small patches of rashes appear on my face and at the nape of my neck and on my scalp which also felt sensitive to touch. This morning (Saturday) I woke up and my eyes were slightly swollen, my cheeks red and I felt warm to the touch. I tried to contact my Dr on Friday but heard nothing back from them. I am wanting to know if this sounds normal and am I safe to wait it out, or do I need to be seen? Edited to clarify- I was given the pre medication to prevent allergic reactions. I think it's standard practice to give them to everybody.
@RedPandaFur

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@RedPandaFur

Is there an MS district community team you can contact as you are UK based? Would a pharmacist know as it’s a weekend? Have you looked at the side effects on MS Society? Can you try a MS charity for support? If not unfortunately you’ll have to go via GP/111 to get to your specialist consultant likely. Unfortunately most of us are unlikely to be medical professionals and can only give own experiences. Not sure if I was in your position I’d be posting here for advice when you never know. All the best.