Tysabri
Hi all, I was diagnosed last month and had my appointment with the MS team on Tuesday. The DR has strongly suggested for me to have Tysabri as my DMT.
Although I'm happy to follow his recommendation, I'm not going to lie... The risks with JC virus does worry me, even though I know they will monitor me. And the monthly trips already feel daunting. I'm just an overly anxious person and worry about everything
Has anyone else felt this way or have any advice? Also has anyone had any side effects after the infusion such as nausea or dizziness ect?
I am Ocrevus. It has worked well for me. I am on the infusions once every 6 months. I went with it because of the lower risk of with JC virus. It maybe worth discussing it with your doctor and ask them to go over your DMT options and the pros and cons of each one. Then ask them why they are choosing Tsyabri and see if you agree with them. I went to three different neurologist and got opinions. I ended switching neurologist to the Mayo Clinic as I liked their approach to treatment. Never be afraid to question their opinion or get a second opinion. Ultimately it is your treatment and your decision.
Hello and welcome, I was on Tysabri for about 7yrs until I tested high positive for JCV then switched to Ocrevus now on Kesimpta for past two years. Pml is scary but rare so don't let that scare you from trying a new DMT. Good luck let us know how you make out 💪🧡