I’ve had that response and I’ve responded with something like, that is amazing, I hope it remains so for them. It is pointless to explain that ms is different for everyone even though we all have shared symptoms and while someone might “look fine” it is likely not the case. I think people just get uncomfortable and don’t know what to say or how to treat you once they know. I’ve experienced obvious pity and then been ghosted because they just don’t know what to do with it. It’s not leprosy, we’re not contagious! 😂. I’ve also had people go the other direction with it and say things like, oh, yeah, I had an aunt that died of ms, it was really bad. 😳. What do you do with that one?! Uh, that sucks but thanks for your input and the little grey cloud you just added to my day! I’ve learned to keep it to myself unless it is someone really close to me. Symptoms sometimes tell the story even if I don’t speak it out loud and if someone cares enough to ask, I’ll share, I’m not sensitive to any of the reactions anymore but I think it just boils down to ignorance about a largely unseen and not understood illness. 🙂💕

@TJack thank you! You’re absolutely right, both that people don’t know what to say - and that it’s a misunderstood disease. It’s nice to know I’m not the only one :)