I feel like my brain is made of candy floss
I was only diagnosed a week or two ago. I seem to be losing the ability to construct sentences when talking to people as I just can’t find the correct words which is really frustrating. I’ve just had to have a conversation with British Gas over the phone and I got so stressed as I had to navigate what he was offering tariff wise and what information my husband had given me (hubby works the hours British Gas is available). I can see my husband is getting really frustrated with me although he won’t say anything, he’s been so supportive. I just feel so useless at the moment.
There’s not really much point to this post other than a moan as I’ve yet to see an MS specialist to talk to about all this. I just keep ending up close to tears as it’s like I have no connections in my brain some days. I have 5 or 6 lesions so I guess that makes sense…
You’re not alone. This side I had my diagnosis last week, my head feels like it’s in a constant swimming pool. My brain no longer connects the two eye visions together - good ol’ double vision. I find it hard to make my eyes stay still too. Just had a load of steroids to fast track recovery but going to be recovering slowly over the next months. Not sure of how many lesions I have or a subtype. RRMS has been mentioned primarily as the suspected subtype. Haven’t looked at DMTs yet until subtype is known. Had some new symptoms since steriods which have made me fear the worst.
I know exactly what you mean. I’ve been told by others that it can be worse due to the stress of it all and that it will ease off. And I have certainly noticed it since my first major relapse in May to now. https://mstrust.org.uk/information-support/health-wellbeing/thinking-and-memory-problems This is a good resource and includes some strategies for coping when you feel like you’re struggling. I hope you feel better soon