Ocrevus treatment one!
I was diagnosed a little less than two months ago after stroke like symptoms landed me in the hospital. One CAT scan and three MRI’s later I was on steroids for five days and sent home with the letters MS in my ears. I waited a week to see if I could get a follow up with the hospital neurologist as recommended but they didn’t have any openings.
I began researching MS centers near me and was SO lucky to get in to the MS Resarch at the Yale School of Medicine (thankfully I only live 40 minutes away). It took 4 days of paperwork to transfer my hospital records and I was in office on day five confirming my diagnosis and sending information to my insurance for pre-approval. I was approved for Ocrevus on the first submission which I am told is not always the case in the US.
Today I received my first loading dose and happy to say I felt no side effects, I was slightly drowsy from the Benadryl but it wore off by the time I left. I called the hospital neurologist office weekly from dismissal to see when an appointment would be available… as of today I would still be waiting for a follow up.
Moral of the story, trust your doctors but don’t take their word as total fact advocate for yourself and seek out alternatives when the help you need is not there. I’m still new to this whole diagnosis but I am glad to have found this app and I am hopeful that my journey forward all though full of ups and downs will be full of support.
