Newly diagnosed RRMS and overwhelmed
Hi everyone,
I’m new here and was recently diagnosed with Relapsing-Remitting MS (RRMS). Honestly, I’m feeling overwhelmed and scared.
I’m trying to learn about MS and choose a treatment, but the amount of information feels daunting. Some days I’m hopeful; other days I worry about the future for me and my family.
One of my biggest concerns is balancing life as a mom to my almost 2-year-old while managing MS. I’m also dealing with extreme fatigue and adjusting to what life may look like going forward.
I’m discussing DMT options with my specialist and am leaning toward Tysabri. I’d love to hear from anyone who uses or considered it. What influenced your decision, and how has your experience been? Anything you wish you’d known before starting?
More broadly, how did you choose your DMT? What mattered most—effectiveness, side effects, convenience, family planning, infusion vs. injection, or something else? Are you happy with your choice?
For those who have lived with RRMS for a while, what do you wish you’d known at diagnosis? What helped you cope with the fear and uncertainty?
Thank you for reading. I’m looking forward to learning from you and connecting with people who understand this experience. ❤️
Hello, I was diagnosed in 2024 and didn’t have any more issues until the end of last year so it was mind boggling for me. I sorry you have to go through this but I have learned to take it one day at a time because the stress just makes it worse and the headaches. I am currently taking kesimpta and it has helped but I still have a lot of pain anxiety and up and down emotions throughout the day. Some days are better than others. I also have children but mine are 12,15,16( all girls). They are helpful but sometimes the add to the stress smh. Kesimpta is the only medication I have taken so far. Keep me post on what you decide.
I was diagnosed about 5 years ago and it can be a shock. I went with the Ocrevus infusions. Once every six months is convenient. I chose it because the low risk of PML. I would recommend vitamin D3 and B12 daily. Diet and exercise help tremendously. It sounds counterintuitive but working out will help with fatigue. Weight lifting also promotes the growth of new neural connections. Treatments to slow progression are pretty good these days. If you try one and you don’t like it you can switch. I am on the Mediterranean diet which I feel has been beneficial. I have five kids so I understand your concerns. Prayer is a big help. Work on the things you can control and leave the rest to God. God bless. You will be okay. Life is good stay grateful for the blessings you have.