@Aussie10girl 

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Aussie10girl

Considering Tysabri

Hi everyone 🤍 I have a doctor’s appointment today and I’m strongly considering starting Tysabri. I’m JCV negative, so right now it feels like a strong option, but I’m still nervous and trying to make sure I ask all the right questions. For those of you on Tysabri (or who considered it), what questions do you wish you had asked before starting? So far I’m thinking about asking: • What side effects should I realistically expect? • How often will I need MRI scans or bloodwork? • What happens if I miss an infusion? • How quickly does it start working? • How often should JCV be monitored? • What does long-term use look like? For context, I was recently diagnosed with RRMS and this all still feels very new. I’d really appreciate hearing your experiences—good, bad, or anything in between.
@TheresaMH14

I have recently been diagnosed with MS and I have chosen to start Tysabri. My neurologist said we would test for JCV every few month. That might depend on your neurologist and how they do things. Iced been waiting 16 days now to start due to prior auths. But I work at a clinics and we have an infusion center here so I'm making sure to bug them if I don't hear anything.

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