Life is challenging!!
23 years of age, after a year of struggle I was diagnosed on 9th jan this year. Told there's multiple lesions on spinal cord and brain. Neurologist said its rrms, but what I'm confused about is that even during the 'relapses' and 'remissions' the pins and needles in my hands and feet are still there and always have been. They've never died down or gone away. I'm convinced it's further on from rrms, had many relapses last year. Think I switched off after initial diagnosis! Yet to have an ms nurse as I'm due more in depth scans so not currently on any DMT. Struggling to get any financial support other than the bog standard benefits, which is actually degrading after I've worked full time since 17. Think I'm coming to terms slowly and it's not helping the depression side at all! Could go on and on!
The tingling in both arms and legs is my yardstick for a relapse/flare-up too and if it’s constant pins and needles, then I know it’s a heavy one. It does get easier riding each one out, as time goes by. 🎠
I am so sorry you are going through this. My first bout was when I was 31 but wasn’t diagnosed. Finally diagnosed at 46 (Dec just gone) and it’s floored me. So can’t imagine being 23 and struggling. The one positive is that it has been diagnosed and at 23 that’s great as it gives you the best possible chance to keep it at bay. I know you are struggling at the minute but there may be other meds they can give you to help with those symptoms. Have you had to stop working because of this? Is that why you need the benefits ? If it is stopping you ask for a supporting letter and try again. Go to citizens advice or the ms trust site to see what you may be able to claim and get them to help you fill in the forms. Good luck lovely and keep your chin up. It’s fucking shit. But there will be better days x