Socially Awkward
So I've always been quite the introvert. But this has become so much worse. Before diagnosis, I battled with lack of understanding with ongoing Bell's Palsy episodes, allergy to airborne citrus absolute nightmare in places will fish or cocktails,extreme light sensitivity and PPPD no public transport since 2019 ppl think I am drunk worse if I throw up. These early things not typically MS. So 2 years after diagnosis I finally went to a family do and the butterflies the anxiety were off the chain. Ppl take offence when I forget what im saying and comments you look so well. Some how my lesions are like truth serum openly speaking about MS, yet I spent more time outside than in. My adult son never far behind making sure I am ok, drink was my friend and
I survived but I can't switch off my brain, revisiting every interaction, comment and look. Room full of ppl but alone smiling and laughing to hide the anxiety.... Its allot and with all the other symptoms ontop not im a rush to do that again. Why do ppl expect us to look like what we are going through??? Sorry vent over....
I am not sure BUT you are not alone. I too have lost a lot of friends and family because they thought I was faking this whole thing. I actually had to show some the results of my spinal tap stating I actually have the bands. So I get you whole heartedly. I hope you don’t go out alone. Especially around those people that don’t support you. Sending you a huge hug! 🫂🧡💪
@Angelwings79 Because their mindsets are based on the generation prior to us where lots more MSers used wheelchairs and walkers thus looked like what they are going through. The ppl haven't caught up with the modern world where DMTs make you more mobile but don't ease the pain inside you thats invisible to others.