Fighting to keep my independence
New symptoms have been coming on thick and fast. 8 conditions all overlapping MS. In 2.5years my life has changed drastically. 80% cognitive, but coping better as im not going crazy and assessment confirmed cognitive decline. Now my mobility! I've fought this since 2015 pre diagnosis doing little things. Today.... the right leg tries to cross the left leg and nearly twisted my ankle touching grass 😲 reality check... The stick displayed like an ornament needs to be with me at all times. It's been my fear using it 😢. When did you start using aids and how did you feel about it?
I’m sorry, and I’m sending you rays of support and kindness. I wear an orthosis for my right leg. I feel fine and I don’t worry about what people about me (I honestly never worried about that 👸🏽💅🏼). I’m simply glad that I can walk and not be afraid of falling. The only downside is that I spend a lot of money on shoe repairs and shoes in general, because my orthosis tears them apart mercilessly. And of course, it’s very upsetting that I lost the ability to wear heels. Right now I’m considering switching to muscle electrostimulation — FES. I’ll wait for my neurologist to return from vacation, and then I’ll immediately ask him for a referral for FES. I’ve been wearing my orthosis for almost three years now. The orthosis itself doesn’t annoy or anger me. Yes, it has already destroyed five pairs of sneakers, but I can walk. Walk! And for me, that matters more than anything. I wish you a fast and lasting remission! 🧡🌺
Started back in 2014, and I only use canes on rare occasions, these days. I got myself into better shape, over the past 5 years, and I lost 100 pounds (after getting off the pharmaceuticals, and switching to Medical MJ.)