Acceptance, coping and bitterness.
Hey everyone,
It’s been a while since I posted or was active on here but I pop by from time to time.
I’ll just jump right into it:
On paper I seem to have it a bit better than I originally thought i would be after diagnosis in that I can work and still function relatively normal but the amount of energy it takes for me to just be normal is inhuman and taxing to be completely honest. And the fact that I coped too well after my diagnosis almost makes it seem like I don’t need help at all. It’s almost like people forget I am sick. Part of it is just me having a hard time accepting my diagnosis even 1.5 yrs later and part of me is also just grieving a sense of loss of control and the fact that there is a new normal I have to adapt to and have no control over.
I feel like the fact that I adapted well in terms of ‘my life didn’t stop completely’ almost invalidates the fact that I went through hell in the first couple of months with three back to back relapses in a span of four months. It’s almost like adaptation made my suffering invisible. Like there was never anything to adapt to in the first place.
I don’t think it’s pity I want to be honest but some sort of recognition that the fact that I meet the same standards as someone with unlimited energy reserves while having major fatigue and limitations is a humongous task.
This has often left me feeling bitter and angry and I’m not sure what to do. I was wondering if anyone here has ever experienced anything like this.
Thanks in advance.