Gradual symptoms
Hey i been finding trips out more difficult. Like my ankles feet,legs,stiff and hurt having to think, being slower at places and difficulty with steps. Im 37. I try my best to stay active. Its difficult when in crowds as people just rush or try push past me. Alsocfinding trains hard to deal with as lately they have been abso boiling and heat makes me feel worse. I dont know why they have heat blasting so much. I really want to enjoy trips just they are becoming more and more work. Not sure what to do. I have an appointment soon to be assessed for dmt. Does that help current symptoms or just slow future ones?
Official line is DMT will help to slow progression but cannot do anything to help with damage already done. However, I have been on Tecfidera (and Vumerity). This did help in reducing fatigue and several symptoms such as burning feet and LOTS of numbness. I've recently moved up to Kesimpta and have experienced even more improvement. I think many of the symptoms are active inflammation and once we get tlon the right DMT, that inflammation is reduced substantially = symptoms improve. All the best in your upcoming appointment. My advice would be to advocate for yourself and choose the most effective DMT on offer! Use the decision tool available on MS Trust or MS society before you appt.
Sorry to hear that. I’m on Kesimota and it’ definitely helped me dampening symptoms. Also less fatigued. All the best