Hello
I was diagnosed in 2017 wiyj optic-neuropathy caused by genetic disorder,. In spring of 2020 I was diagnosed as having RRMS. I'm looking for resources and help as I need help navigating the resources
Is anyone driving with RRMS? Is it safe and responsible to do? Also, I’m 31 and my husband is going to be 37. We really want children and well clocks ticking with our age but we are both worried about the repercussions for the child and myself. I know MS isn’t technically hereditary but I also want ...
Morning 👋
I’ve had RRMS since 2011 and it’s only ever caused sensory impairment to my hand. Until a year ago when my walking started to be impacted, occasionally. That ‘occasionally’ is now pretty much all of the time and I use a stick. Consultant thinks I’ve probably moved to SPMS (was not in my...
Is anyone else in a really lonely season? I’m about 4 years into my diagnosis of RRMS, and I’m learning how to manage, but each day is still so hard physically and mentally. I’m in my early thirties, and I have no other friends who have MS that I can talk to. Reaching out to see if I can find some f...
Is anyone else in a really lonely season? I’m about 4 years into my diagnosis of RRMS, and I’m learning how to manage, but each day is still so hard physically and mentally. I’m in my early thirties, and I have no other friends who have MS that I can talk to. Reaching out to see if I can find some f...
Hey, so I’ve been neglected for years with my MS however I’m now hopefully on route to get it sorted… o just gave birth and I’m having some side effects (yaay) anyway we’re about to start Gabapentin at 100mg night time use - has anyone used it? What’s your experience?
I’m also now reading I to DMD...
Hi guys, I was just wondering how you all cope with things progressively getting worse? I’ve only Been diagnosed for six years and I am 23. Unfortunately, I have Advanced MS And I am really struggling to deal with not being able to do what I used to do. How do you guys deal with it?
So my story so far. I was a firefighter and developed drop foot 😒 this then took me off the run. Not being a fully fit operational firefighter is depressing. I was diagnosed with Clinically Isolated Syndrome. So after a year of intense physio I was medically retired😪. I was told by the consultant ...
So i finally got to see my GP who knows me and my health issues. It has been established that i have no infections so my GP said for me to contact the MS relapse team which i did. They have been do supportive and understanding which is a god send so I've now changed how and when I'm taking my meds. ...
I’m just entering the crap gap and things are beginning to get worse or return. Swallowing is complicated and I’m getting upset. I hear from many people that their swallowing is tricky, that they (like me) seem to breathe in too soon and choke, or swallow saliva the wrong way and choke, or whatever....