@StillClaire 

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StillClaire

When your legs don’t work like they used to no more (Ed!)

Morning 👋 I’ve had RRMS since 2011 and it’s only ever caused sensory impairment to my hand. Until a year ago when my walking started to be impacted, occasionally. That ‘occasionally’ is now pretty much all of the time and I use a stick. Consultant thinks I’ve probably moved to SPMS (was not in my life plan!) and awaiting an MRI to see if what’s going on upstairs. My question to anyone with mobility problems is how the heck do you (or even can you) predict what your limit is? I’m increasingly finding that I reach a point where I can’t stay upright/ move without two walking poles and that can be after a 10 min walk….or a 40 min walk. I don’t get a warning, I just literally can’t go any further. Felt completely ok strimming the grass for a short while but came in and my legs said no, down you go! The unpredictability of it is doing my nut in and I wondered how everyone else copes with this? I’m a pretty resilient soul as a mental health nurse and a therapist, but this is another level of swamp to navigate. If you have anything to share, I’d be grateful 🙏
@deano

I used to have that problem Boom or bust, now I accept I have to use a wheelchair for longer distances, just something I have to do now. I use a cane to get around at work

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@StillClaire

Thank you for taking the time to share your experience :-). Boom or bust, I’m stealing that! I feel like I might be (somewhat reluctantly) heading that way. It’s great to know I’m not alone in this…

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