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@yazmin11 

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yazmin11

The UK heatwave!

Keeping cool! What are people’s tips?

@Dess32 

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Dess32

New meds

I'm going to see my neurologist tomorrow about using a new MS treatment. I out of no where I got advice from family about treatments and medication I should try. I've been fighting this disease since I was nineteen and now at thirty three I think my family might see me as a bother or complainer. May...

@SamieC 

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SamieC

Olfactory Episodes

Hey, just wondering if anyone else here has Olfactory Episodes - where you smell smells that aren’t there… I smell old cigarette smoke - like Dunhill. Since being on pregabalin it’s stopped but recently had a relapse and was smelling the smell on and off for a week or so beforehand. Then 2 weeks of ...

@vleonte 

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vleonte

Being thankful

Looking back at your MS story, what’s one thing are you grateful for? Me: I am grateful for my family who supports me daily in the MS struggle. I’ve had MS for more than 20 years. I am also grateful to this community where I learn from my brothers and sisters on how to best deal with this monster (...

Infusion vs Injection

So I off for a beautiful day hooked up for my ocrevus infusion (in the uk) has anyone tried the injection form? How was it? Any side effects etc?

@mschadk 

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mschadk

Heat

The UK is in heat hell. Anyone else struggle to sleep last night? I’m in work today and so underslept. I have an aircon unit but our apartment block is small and we all tend to stop all noise around 10pm… hosing sticking outside windows is noisy as hell!

Suddenly freezing live no matter how you are?

I tend to suddenly freeze with tremendous pain included! I always think it's just me but I'm sure someone comes close or closer to me 😔

@pikilily 

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pikilily

Fampyra and Seizures

Does anyone know, if you are unlucky and have a seizure is any risk of further seizures reduced/eliminated as soon as you stop taking the drug, or are you left with a residual heightened risk of repeated seizures?. My ms team are keen for me to try Fampyra and I am looking at the pros and cons. Fo...