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@mintyrocksmaka 

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mintyrocksmaka

MS Society

I've spent a good hour talking on the phone to an MS nurse . She was brilliant. So anyone out there that just needs a chat reach out. There was no rush at all and I felt better just to offload 🙂

@Trevor 

Last reply

Trevor

Be your own advocate !!

I had HSCT for Multiple Sclerosis here in the UK. I was discharged from Hospital 11 years ago this Christmas. I have been in remission ever since, despite the MS Society UK telling me among others ‘not to do it, because the treatment was dangerous.’ Their actual words to me were ‘Don’t do it, it’s d...

@Sasdoch 

EditedLast reply

Sasdoch

Speech

Me again sorry - does anyone's speech sound like they are drunk? Been told I sound like I am slurring my words - I am not drunk by the way - do I need to see Specialist or is it just one of those things 🤦‍♀️🤦‍♀️🤦‍♀️🤦‍♀️🤦‍♀️ thank you 😘😘

@wellbelle 

Edited

wellbelle

suprapubic catheter - any good advice?

Hi I’ve been advised to get a suprapubic catheter with bag by my urologist. TBH it’s a relief as my urinary incontinence has been soooo bad for the last 12 months and treatments have failed to improve it. Wondering if there are any good resources or support groups that anyone knows of about these c...

@Leeb 

Last reply

Leeb

Ticklish?

I'm not ticklish, never have been. When it recently came up in conversation, I wondered if that was common in pwMS, possibly even an early sign? So, are you ticklish, and what type of MS are you battling?