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Kesimpta & Immune System

Hi guys, I’m looking at my options for medication and drawn to Kesimpta and trying my best to do the research! However, I work with children and it’s not uncommon for me to catch a cough/cold across the academic year! My question is, do you think it’s wise for me to take Kesimpta as I’m likely t...

@rooneyleoni 

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rooneyleoni

The Invisible Illness

People often ask how I'm doing, and it's hard to explain that I look fine on the outside while my internal battery is sitting at 4%. Invisible illness is a masterclass in masking. How do you usually describe your energy levels to people who just don't get it? 🔋

@Treesa52 

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Treesa52

Humble

Yesterday I took a walk with my daughter, because of my balance I used my cane for the first time. What a humbling experience. Is using a walking aid embarrassing for any of you?

@ChristyStook81 

EditedLast reply

ChristyStook81

Dense fascia

Has anyone heard about research that suggests MS patients are found to have dense fascia throughout their bodies that is causing our pain, essentially the "other part" to this disease. The reason we can have MRI's that suggest no change but our bodies are still feeling like we're moving in the wrong...

@msee100 

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msee100

What song reminds you of an MRI?

Cars by Gary Numan, especially the eerie high notes make it my top pick. Any others…

@rooneyleoni 

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rooneyleoni

Hey everyone. I wanted to officially step into this space and say hi.

I was diagnosed with RRMS back in August 2025, and I’m still very much figuring out what this new chapter looks like. If you're also navigating DMTs, energy pacing, or just trying to make sense of a chronic diagnosis, I see you. Glad to be here.🥰

@Laur3n89 

EditedLast reply

Laur3n89

Constant nerve pain!!

I have constant burning in my left leg!! I’m on 2100mg of gabapentin a day and I have 4 weekly injections of Natalizumab (Tysabri) Is there anything I can do to stop the pain?? I’m unable to walk far I feel like a slob all I do is sit on my sofa with my feet up. This isn’t a life!!! 😭

@carmenrivera 

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carmenrivera

Relationships/marriage

Has anyone ended up getting/considered a breakup after getting diagnosed? Did anyone’s partner just stopped caring after seeing some type of improvement? In my case when I first got ny diagnosis I told my husband that if he wanted I would sign the divorce papers (I’m 28 he’s 40, Im the one who work...

@yazmin11 

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yazmin11

Resigned from my job!

I didn’t last long (8 weeks)!! I thought I was doing okay, but they were pushing me out. Therefore, I resigned before they sacked me! It was an ideal job, charity company too!