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@St1gzy 

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St1gzy

🐝 Right, I’m going to kick the fucking beehive with this one…

MS, meat, dairy and restrictive diets. What’s your 10p? I’ve been thinking about how many of us get diagnosed with MS and suddenly food starts disappearing from the menu. Meat goes. Dairy goes. Gluten gets escorted from the building. 😂 There is some interesting MS data around this. One Australian...

Issues wth intimacy

Does anyone else have issues with being intimate due to spinal lesions? When I’m having sex I can’t feel what’s going on properly and I’m struggling to enjoy it because I can’t feel it the same way. Looking for a) any tips if they exist and b) just solidarity if it’s an issue other people have

@Bdso98 

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Bdso98

Anyone here on Lembrada?

Hi everyone. Just found out about this app today. I was diagnosed in 2021 and after 2 DMTs, had to take a more aggressive approach with Lemtrada since the previous two didn't seem to be working. Anyone here wanting to share their Lemtrada journey? FYI: the other two that didn't work were Tysabri an...

@ashia2013 

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ashia2013

Stopping Fingolimod to change DMT, weird side effects?

Really random but I’m switching from Fingolimod (Gilyena) to Cladribine. Been off Fingolimod a couple of weeks and feel extremely weak, light headed and just zero energy. Proper strange and thought it would stay in my system for four weeks. Is this normal or just me being paranoid

@les 

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les

Leg pain trying to sleep

Anyone else get leg pain whilst sleeping, I wake up every 30-40 mins and have to turn over, then it’s back in the other leg 😩 nuro doc prescribed me 200mg gabapentin for 1 each night, anyone any experience if this will help? Getting seriously run down and tired all the time

@SSendling 

EditedLast reply

SSendling

Kesimpta

Hi everyone! Just a quick question, any of you felt like your syptoms got worse after starting treatment? Or is it just me? Since I started my treatments back in June I’ve developed foot drop and my legs seem to never stop aching now. Just curious if anyone else has dealt with anything like this. Ho...
Kingwood, United States

@ashia2013 

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ashia2013

Family History/Genetics

Just wondering how many of you have a family history of Multiple Sclerosis like we do in my family. My big sister was first diagnosed with MS, then myself in 2011, followed by my big brother in 2021. Sadly we all watched the disease take my Mum in 2023 which was utterly terrifying. My twin has Lupus...

@bertugk 

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bertugk

Boosting the Immune System

Hello everyone, I take Fingya, an immunosuppressant medication; I take one pill daily. Because of this, I really can't handle the cold—I get sick very easily. What do you do to support your immune system? Besides eating winter fruits rich in Vitamin C, I also drink turmeric mixed into hot water. I...