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@applejacks 

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applejacks

Netflix recs!!

I’m scheduled for my Ocrevus infusion this coming Friday! Counting down the days for it since I’ve been not feeling the best. I did the two half doses last December, so now I’m doing my first full dose! I’m assuming it’s going to be a long ass appointment, so if you guys have any recs on what to wat...

@Manjerica 

EditedLast reply

Manjerica

How to deal with doctors bad news ?

All the waiting, all the exams, all the results has been such a rough journey to me. I was in a cruise when I missed 4 calls from my doctor and heard a voice mail saying “we need to talk about your results”. How do you lead with this? How can we stay calm and away with anxiety, even more when bad ne...

@serenawolf 

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serenawolf

My neurologist basically told me to get over it

I've had active and worsening symptoms for a few years but no lesions showed on my MRI (taken two years ago), and my neurologist was very dismissive so many times I gave up for awhile. Finally went back to him, explained my worsening symptoms, basically begged for help for a diagnosis or another ref...

@SSendling 

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SSendling

I did it!

Shew….thought I was going to throw up but I did it! I just took my first dose of Kesimpta 😮‍💨
Kingwood, United States

@nickram 

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nickram

Bladder issues

Does anyone else deal with this. I went to this urologist who didn’t seem like he cared at all but told me about some invasive things he wants me to do with a catheter and I was like no thanks and I’m just curious what other peoples experiences are and what they’ve done to help bladder issues

@Stacyrigg99 

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Stacyrigg99

Hard to Breathe

I’m having a hard time breathing. Everything I do today seems to make me lose my breath. I noticed it a few days ago but it’s worse today. I went up the steps and had to hold on to something till I caught my breath. I picked up a basket of laundry and sat it on the table which was just 2 inches away...

@Laura81 

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Laura81

Shoe recommendations

Need some recommendations for some comfy lightweight shoes. I live in trainers especially converse but I have noticed once I take them off my feet and ankles feel especially tired and sore. I go away next week which means a bit of walking will be done and I want to be able to enjoy my time away with...

@claudiamonique 

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claudiamonique

MS Shakes

What helps when you have the MS shakes?