I have dealing with this for some time and not getting anywhere with Dr’s. When I have to go I have less then a min to find a bathroom. And when you can’t “run” or even walk fast it makes it hard to make it in time. I take Metamucil every day in the morning. I have given up Dairy at the advice of...

Do you ever feel like MS is now your identity, after all these years it’s all making sense what all these symptoms were like a jigsaw puzzle being solved. I was diagnosed October 2025 and my DMT is currently on hold until my angioedema/urticaria flare ups stop..

Just wondering how many of you have a family history of Multiple Sclerosis like we do in my family. My big sister was first diagnosed with MS, then myself in 2011, followed by my big brother in 2021. Sadly we all watched the disease take my Mum in 2023 which was utterly terrifying. My twin has Lupus...

I decided to write down some of my thoughts about living with MS. It turns out I had loads to say. It turned into a book. I published it today! I just wanted to gush. I’m sure you understand lol 😎✊👨‍🦽

I have used an ankle foot brace for a couple of years for drop foot. Finding suitable shoes I’d always a challenge. I have been looking (online of course). My partner has found a brand called “Cadense”. A US brand developed there originally for Stroke survivors. To improve their walking without an ...

Alright, if you live in the DMV then you know the weather is changing. Fall is here. And my MS folks who are sensitive to heat like me are so happy. I will say my body was going through so many questionable this this summer but Babee! I will tell you I started to sleep like a champ, walking a little...

The title is my thoughts for the lead up to the 16th of the month, (every month now) or alternatively I call it my monthly ‘birthday’ as I do feel I receive a present when I inject the drugs into myself. A strange mindset to say it, but my honest thoughts. The ‘drug’ I refer to is Kesimpta. The ‘pre...