I am so sick and tired of this damn weather, it's too hot 🥵 for me and when my body gets hot, my paralysis on my left side sets in and I feel like straight 💩. MS is a bitch and it sucks so bad. I really hate it. Me and heat do not get along. I'm so ready for the weather to hurry up and cool down....

Things seem to be getting worse, maybe? Yesterday I had to use a power scooter when I was shopping. I have a cane now. Two weeks ago I ended up in a wheelchair. I can’t keep up with my home. My husband is in the NVARNG (Army NG) and keeps getting activated for weeks at a time for these awful wildfi...

So I recently decided that I wanted to go back to school so I enrolled and started last Friday. Now I have been having some terrible symptoms due to heat intolerance and new lesions found on my brain/spine. Should I stay in school or give it up due to me being disabled?? Just curious to see what pe...

So I get looks everywhere I go due to me using a mobility scooter sometimes when I go places that require long distance walks or a lot of standing. MS makes it hard enough but add Lupus and POTS to it and omg Im over the judgment of people who don't even know me or what I go through everyday....it's...

Second bike ride out today on my electric trike. I got over myself today and stopped worrying what will people think and stopped having a pity party for one about not having enough balance to ride a bike anymore. Taking today as a win. Trike riding Vicky 1, MS 0…hope I don’t pay for it for the next ...

Hi, Hope everyone is as well as can be!! Not sure if I’ve asked this before but can MS or Ocrevus cause gray hair growth? Over the last few months if ‘sprouted’ loads and I’m only 36 so wasn’t expecting so many so soon. X

They've just found two new lesions on my brain and now They're discussing to change my medication. I'm currently on tecfidera And they have suggested Ocrevus. I know my MS is active but it's not severely active and with Ocrevus it completely gets rid of your b cells. I also thought about kesimpta.....

Oh my gosh!! I can’t be the only one that does everything for everyone.. handles all my crap and a single mom on top of it alll! I hold myself together most days without lashing out and yelling.. partly meditation that has helped. BUT RIGHT NOW!!! I FEEL ON THE INSIDE MY BLOOD BOLING OVER! Another...