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@Swannie 

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Swannie

Stiff hands

Does anyone get stiff/painful hands? I mainly get it in the morning but I do also get it throughout the day. Especially using tools, eg utensils, stationery (pens, pencils etc), knives etc. If so what do you do to relieve the pain? I normally use a electric hot water bottle (but as it’s hot I can’t ...

@mdS 

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mdS

Anyone have vibrations?

I recently have started having this weird sensation and so far it's only been noticeable when I lay down to go to bed but it feels like my insides are slightly shaking all over. It's just weird like a low grade vibration feeling. Didn't hurt just freaks me out a little bit

@TS13 

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TS13

RLT for MS?

Hi, just wanted to get an opinion on whether anyone is or has done Red Light Therapy and if it made a positive difference? Reading a lot about the positive impact it could have on fatigue etc but just wanted to check in before i invested in some kit..which i need to find also, so any suggestion woul...

@Poppy63 

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Poppy63

Ocrelizumab in PPMS

Hi everyone, I am a new joiner, based in Greater London, excited about this network. I would like to know if anyone with PPMS has tested Ocrelizumab and how did you become eligible for the drug - has it made any difference in your daily life. Thank you very much for anyone sharing their experiences....

@StellaPia 

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StellaPia

What??

So last week I saw my MS Dr. After a decade of being told it's definitely PPMS, she says maybe not. Maybe I just said PPMS so you'd get into their medical trials. Maybe it's this new kind we're talking about called Primary Relapsing MS (PRMS). WTF is PRMS now? Are we just making stuff up as we go a...

Meal prep

Getting into meal prep to save energy & eat healthier during work week and need some inspiration… anyone got any fave go to recipes?

@sarajessica45 

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sarajessica45

Full mri

Im getting ready for 2 out of 4 back and head mri fun fun I do 2 tomorrow then 2 Friday