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@Mel1477 

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Mel1477

FES

I've just started using FES, has anyone had it on when going through the airport? I asked the physio who fitted it but they weren't sure. Thought I'd just take my letter that they sent me? Any advice gratefully received 😊

@skullfunked 

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skullfunked

Referral for cannabis therapy

Hi guys Ive an appointment to talk over starting with cannabis therapy for the spasticity (particularly in my hips) I know there are some smokers here how well does it help with your spasticity?

@Fuzzibunni 

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Fuzzibunni

Little London meet up

3 of us so far are planning on meeting up soon myself @val and @kiko41 likely somewhere in central London... if your local and would like to join comment below

@Historicus 

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Historicus

Itch

I have what is probably neuropathic itch during my crap gap. Anyone else? What relieves it?

@Val 

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Val

Anyone in London?

Hi, I have been recently diagnosed and I am still learning how to navigate this condition 🧡 it's a bit of a lonely feeling like none really understand what I am going through.. I live on a canal boat in London and I am looking for people that are going through the same to hang with in London if a...

@Bigmac 

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Bigmac

Friends

Hi people ☺️ I am looking for some MS friends from the UK, I really struggling with making friends especially since my diagnosis. I really need people in my life that understand MS life

@Starmiss 

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Starmiss

Waste of a disabled bus pass

So I had a rant, yes I feel slightly better. Left without medication again so still not slept and it’s currently 4.35am 🤷🏽‍♀️Ms team I’ve been to you numerous times crying out for help. You’ve never helped. I tried to take my own life as I’m really struggling, crisis team reached out to you as the...

@b0nita 

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b0nita

Confused

I take ocrevus 1 time a year. Next year will be my last. My doctor told me she's taking me off meds for good . I mean I feel great always have.
Pasadena, United States

@sasha999 

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sasha999

Why I’m Coming Off Ocrevus: My MS Stor

Living with multiple sclerosis (MS) means constantly adapting — to symptoms, to uncertainty, and to treatments that don’t always work the way you hope they will. After starting Ocrevus (ocrelizumab) in June 2024, I’ve now decided to stop — just over a year later. It wasn’t an easy choice, but it fee...