People keep talking around me BUT they dont know i keep my mouth shut so i can save my energy and brain power 😂

Does anyone take anything for Nystagmus? Is there anything you find works?

Just curious, how old are y'all when you were first diagnosed???

As we all hope it doesn't happen, it has started for me. It began with small things. I told my partner at the time that I felt off. My speech and thought process started to change, and I was making impulsive decisions. Yesterday I noticed balance issues along with pain in my feet, legs, and sharp p...

So I was in hospital yesterday and last night till 3 in the morning. My breathing got really hard, shallow and noisy and short of breath so doctor sent me to A&E. Anyway after my asthma rules out and croup , pneumonia etc through steroid drip and nebuliser, he tells me it seems it’s progression of t...

Hereyee hereyee 🫡 I feel like it's just me, myself, and I who enjoys and prefers to have conversations with someone and anyone? I guess that's my red flag. Hard to find people exactly like me 😔 No wonder I'm always a sack potato 🥔

Does anyone have issues with their vision where your eyes are on fire it’s not all the time but occasionally my eyes burn so bad that I can barely keep them open it’s torture writing this post I’ve put lubricant eye drops in them but it’s usually only one eye that’s worse than the other just wonderi...

Going out on the lake tomorrow. A bunch of us on a boat all day lol. Well in the water too. I’m trying to do more things but honestly this one is probably going to put me down for a day or two. Hope it’s worth it. I’ll let y’all know how it goes.