Has anyone felt extremely lonely or isolated and lost a lot in different ways since being diagnosed? How do you navigate this please?

Anyone Like To Make Friends

Hi all, In six weeks I’ve grown three more lesions in brain and spine and finally met criteria 🙄 this is all in under 6 months and it’s progressing fast. Lesions (multiple) in left and right brain along with c2+3. I’ve been told they a perm damage now? :( Symptoms are getting harder by the day. Nu...

Had neuro physio the other day. Balance has got worse legs still strong. Told them legs go weak when walking more than 5 to 10 minutes but got told legs seem strong and the pain is what's stopping me from walking further so stuck pregablin up. Yes pain is their a normal day really. But my legs go wo...

Every now and then while drinking (doesn't matter what)i will just spit up as if I was laughing at something someone said. It just happens and I never know when. My family makes it a standing joke that nobody wants the seat directly across from me.

Hi guys! Please don’t judge but I’ve only found that drinking Monsters beats MS fatigue while at work. I know energy drinks are horrible for your heart so I was wondering what else I could drink or take to beat the fatigue on work days. Thank you for your insights and tips xxx

Do you tell your colleagues at work? My manager in a meeting tried to tell me she thinks I should let them know. They are a small team we're all girls. They seem nice But when I began my role I did state I wanted my diagnosis confidential. I think some of my colleagues may already know. It is awkwar...

I originally joined this community to ask for advice as I was about to get my second ever MRI (first one gave me the diagnosis) 2 years later. Got scared, already have my results and fortunately there are no new lesions! So I guess I’m now sharing my happy news 😁. Would anyone want to connect? Here...

Update on this post.......I really want to say huge thank you to all those that left me encouraging and caring comments. Each and every one has helped me so very much. 3 weeks on I have lost 6 lbs, excercise much more, drink more water, given up caffeine, use an excercise bike, taken up Tai Chi and ...