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@lindina 

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lindina

Looking for MS doctor and neuro-physiotherapist in London

I can barely walk after first dose of Mavenclad and it lasts for 7+months. Do you recommend any experienced neurological physiotherapist and neurologist/MS experienced doctor? With my doctor, we’re looking for “second opinion”.

@jessicajane 

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jessicajane

Struggling to decide on what treatment to choose.

I’m really struggling to decide which treatment to go with. Honestly, I have no idea where to start! My neurologist recommended four different options, but I’ve narrowed it down to two that I’m leaning towards: Ocrevus or Kesimpta. For those of you who have been on either (or have tried both), whic...

@St1gzy 

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St1gzy

MS, You Haven’t Had the Last Laugh 💚

Having MS doesn’t give any of us a free pass to be horrible to everyone. Life is hard enough without spreading bitterness around. I’ve been very fortunate to speak to so many talented MSers—a lawyer, a nurse, a chemist, and people from all walks of life. Some have fewer physical limitations; others...

Using my phone less has helped

I bought a watch recently because every time I was looking at my phone to tell the time it would lead to more screen time. I’ve noticed my right hand tingles and fatigues a lot less since picking up the phone less. My average screen time a day is around 2 hours now where it used to be 4 hours. The ...

@pearhouse 

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pearhouse

Is everyone offered a DMT?

Hi all, I’m in England (I know other countries it seems to work a little differently, that’s what I’ve picked up on this app anyway) I’m curious to know your thoughts. I received a letter today from my MS nurse that states my bloods were done in preparation for ‘potential treatment’ does this mean ...

@Mondaygirl22 

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Mondaygirl22

My mind

What mind wants me to do and eat and what my body wants me to do are two different things. I try to listen to my body because that’s where all the pain is more than my mind, but it is a struggle some days for sure.MS is a horrible disease!!!

DMT’s.

What’s everyone’s thought on DMT’s. My neurologist has suggested a few. From being tablet form to self injections. He also said about Cladribine

@well well well 

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well well well

Moving Your Head

Hi folks. Do you deal with a dizzy feeling specifically when you move your head too far back or too fast from side to side and up / down? I’ve had some disabling dizziness and vertigo in the past and it’s acting up after a few years off. I’m looking for strategies others have used to lessen the p...

@ChloeM22 

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ChloeM22

Friend Request 🧡

Hi all 👋 Bit of a pathetic post, I'm sorry, but I need this. Would anyone be willing to be a friend? Since my symptoms really started getting bad around 18m ago, my mood has just been getting worse and worse and now I just don't know what to do. I have a husband, I have my daughter. They are wonder...