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@samanthad 

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samanthad

Wrote a poem about diagnosis, what do you think?

STILL ME by Samantha Derry Yes, yes, I’ve been diagnosed with MS, But I am still me, I must impress. Still the same person I have always been, My spirit, my soul, want to be seen. Please don’t look at me with pity, and don’t be sad, Yes, life will be different now, but it’s not all that bad. Othe...

@samanthad 

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samanthad

Just diagnosed yesterday, what to expect?

Hi, I got told by Neurologist yesterday I have MS. I’m feeling a bit lost and confused and worried about how different my life will look now I have this condition. I’d be grateful to know if there are any things people wish they knew when they were first diagnosed that may help? I’ve just finish...

Home eeg

Well get my 3 days of being hooked up and watched today lol doing a at home eeg where they study my brain and have 2 cameras to watch me to see wtf I was doing when they got spikes in brain activity

@ecnerolf 

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ecnerolf

Wetsuit

Anyone feel like they are wearing a cold wetsuit all day long, maybe a couple of sizes too small?

@StacyJG 

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StacyJG

Itching

Does anybody deal with itching? I mean like all over from head to toe. Sometimes I actually get hives in a rash other times. There is nothing you can see. I was originally diagnosed with MCAS but I’m wondering if it’s MS related. I take hydroxyzine and I’m also on ketotifen, but sometimes neither o...

@anthonyenglish 

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anthonyenglish

Who all is on Ocrevus Zunovo?

I'm starting it soon and I'm really worried and scared because I don't know what to expect. I'm really not good with medication so I'm kind of freaking out.

@JayJay10 

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JayJay10

Coffee is a good friend

Whether it helps MS or not, I’d always have some as my body craves it. ☕️

@Marciab 

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Marciab

?? New symptom

A good few weeks now I'm getting pain and a strange sensation going down the right side of my neck and right arm. I can only describe it as nerve pain. What are your thoughts?

@kmskyls 

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kmskyls

Fatigue

I just want to be able to make my bed without having to take a rest before I get the sheets on. Im having trouble with the fatigue as of late. Just doing simple things take a toll on me. I feel so useless. I always have to ask for help doing things I know I should be able to do myself. Just wanted t...

@JamJam79 

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JamJam79

Sometimes I just feel overwhelmed

Vibrations, migraines, almost too much pain to bare, dizzy, fatigue all at once and for long stretches of time like this has been going on for months nearly daily. Yes I've talked to my PCP and my neurologist and both suggest physical therapy which I've done twice in the same year with no help. My p...