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@MsinAround 

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MsinAround

Hobbies

I’m trying to find hobbies that require little energy and can be done sitting and such. I enjoy painting but do any of you have suggestions? Thank you!

@Beadburk1 

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Beadburk1

New to the group saying hello

Hi everyone. I’ve just found this forum and I thought I would come and say hello. Previously only been on Facebook groups, but sometimes they can get a bit raucous. I’ve had MS for 37 years. I’m now 60 and although I know we’re all different, I’m happy to share my experiences, especially with newly ...

Myelin Maniacs update 🎙️🧠

Things are slowly getting real. We’re still looking for guests with MS who fancy coming on for a chat. You absolutely don’t need to be polished, experienced or remotely podcast-shaped. The whole point is real people talking honestly about life with MS. But I’m also putting out a call for the nerds...

@Ice 

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Ice

Where to get grab bars installed

I am looking for an organization I can turn to that can help install grab bars and make my home overall safe for me with MS.

@clareges 

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clareges

What does everyone do for work for the ones who is still able to work?

I’ve been laid off since November of last year and I’m struggling to find work. I did a little bit of college, but never a bachelors degree. Is there any special programs You have looked into and got help. I’m located in the United States
Chicago, United States

@lulagm2001 

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lulagm2001

1yr from Diagnosis today

Today marks one year from my diagnosis. I have a lot of mixed feelings and definitely emotional. I have since only disclosed to a handful of coworkers my best friend and my immediate family. I have wanted to shout it to the world but at the same time I don’t feel ready. I have had 2 infusions and fe...

@Beadburk1 

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Beadburk1

Writing a book

I've been thinking about writing a book where the main character has MS. I haven't quite fleshed the idea out yet, but I think it might be good to show that we don't stop being people at diagnosis

@MSJess1988 

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MSJess1988

All about perspective..

I had my follow up appointment yesterday with my cervial spine MRI. Didn’t show really any changes.. clearly I have something going on. It’s been since March / April and my brain MRI 1st at the end of April almost May by this point showed a lot of old lesions and “black holes” basically.. Long story...

@amandaruiz2025 

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amandaruiz2025

MS Symptom

Hi… I received my Ocrevus infusion Thursday 8/20/26. I have been experiencing on my left side torso burning sensation and sensitive to touch… it started last Monday the pain is increasing day by day.. was just wondering if anyone else has experienced this.