This is so new to me. I was diagnosed in April 2026 after having optic neuritis. It was very scary and I thought the headache prior was just due to stressors of life. I am scheduled to start Ocrevus in the summer. I’m trying to keep a positive attitude, I exercise five days a week and walked 1-3 mil...

Hey 👋 Ive recently been diagnosed out of the blue and its a complete shock to me. I started with pins and needles in my feet that progressed to numbness below the waist. A few MRIs and a lumbar puncture later and here we are. Waiting for a neuro appointment next week. I guess I dont know how im fee...

I am not sure whether to have the flu vaccine or not. I am in Australia. Winter is coming the last time I had the flu vaccine. My MS symptoms flared up and was very difficult for me. I am in a wheelchair and secondary MS so not sure. I take medication Mayzent (ms) which has lowered my white blood ...

I’ve heard that some people with MS deal with seizures. I’ve been experiencing odd things. Such as today I was sitting on my bed and wanted to get up to hang my clothes but I physically felt like I couldn’t move. I was staring out and was aware but felt almost locked in my own body. I’ve had this be...

So I am 7 weeks pregnant and I've read that pregnancy can help with relapses from MS. Well I have had some very unusual pregnancy relapses. Not to mention it makes me more tired 😴 I'm using the restroom more often than usual 🚽 I'm always tired 😴 I'm severely nauseated 🤢 I get tingling in my...

Celebrating my 15 year Dx anniversary today! Somewhere along the way I learned to grieve, allow myself to be tired, and move forward with acceptance and always search for better ways to live. So I marked this day on my calendar as one of my special occasions and buy myself gifts in advance 🤓 Do I...

I wish I would've got that doctor name i felt disrespected

I was diagnosed a little less than two months ago after stroke like symptoms landed me in the hospital. One CAT scan and three MRI’s later I was on steroids for five days and sent home with the letters MS in my ears. I waited a week to see if I could get a follow up with the hospital neurologist as ...

Hi I hesitated before writing about this issue For private reasons But since a year now or so I can’t climb the stairs to second floor in my house I can go up and down stairs anywhere else but not my house Stair is built by marble I’m not sure does it scare me am I anxious or is it an ms thing Last...

In the UK. Not ready for this heatwave coming next week. I’m already getting frustrated with todays heat, 24c.