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@ashia2013 

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ashia2013

Stopping Fingolimod to change DMT, weird side effects?

Really random but I’m switching from Fingolimod (Gilyena) to Cladribine. Been off Fingolimod a couple of weeks and feel extremely weak, light headed and just zero energy. Proper strange and thought it would stay in my system for four weeks. Is this normal or just me being paranoid

@Krowens 

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Krowens

Body jerks? Newly diagnosed

I am very newly diagnosed. I have started experiencing more body jerks. It’s my upper torso and legs, sometimes including my shoulders and arms at the same time. I’ve always had my legs do it, but now it’s getting more aggressive and moving in my stomach and upper body. It’s quick and very annoying....

@melissab22 

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melissab22

Newly diagnosed, started DMT, thyroid issue

Ok - got diagnosed in late April, started DMT in June. One scan prior to DMT showed a nodule on my thyroid - will the existence of this + DMT put me at greater risk of thyroid issues?

@SarahLaine 

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SarahLaine

Newly diagnosed, what am I in for?

Just diagnosed in the last week or so (36yo first and only known symptoms Dec 25). I’m feeling OK about it because Drs have basically said “with DMTs symptoms will be minimal” so by all accounts not expecting much to change. Without putting the fear of god in me 😂, how accurate is that? Just wonder...

@St1gzy 

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St1gzy

Quick question?

My MS brain can’t remember why I’ve walked into the kitchen, but apparently at bedtime it needs to investigate Noah’s Ark. 😂 Everyone’s debating whether the boat was big enough. I’ve got one question: Where the fuck did he get a polar bear from? 🐻‍❄️ Was there a bloke on Facebook Marketplace? ...

@Treesa52 

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Treesa52

Humble

Yesterday I took a walk with my daughter, because of my balance I used my cane for the first time. What a humbling experience. Is using a walking aid embarrassing for any of you?

@Terauda 

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Terauda

Dealing with Chronic Facial Nerve pain

Hi everyone 👋. Hope each and everybody is having a good day. Question.. can anyone suggest tips to ease the pain you get from facial pain, my right side has been hurting more than usual this recent week 😔. Thanks

@kaylouise 

EditedLast reply

kaylouise

PIP assessment last week

Good morning all, I had my pip assessment on Thursday it was around an hour long over the telephone - the assessor then called me back a few hours later and told me she had spoken with her manager and my case is quite complex and that they wanted to get it right for me - I’m guessing complex becaus...

@shellyEd 

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shellyEd

Working Fully Remote

Asking if anyone has ever asked their employer to grant working fully remote because of health issues and was denied. Even though everything done on site can be done at home. Please Share experiences or laws concerning disability in the workplace that you are aware of. I am in the state of MA.

@Mcfly 

Last reply

Mcfly

Responding to friends

I'm finding that I am getting quite frustrated and upset that friends dismiss my symptoms, say I'm doing well and tell me they can't see I have any issues at all when inside I'm struggling with fatigue, tingling, loss of sensation and symptoms like vertigo, eye pain and balance issues. How do people...