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@ashia2013 

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ashia2013

Family History/Genetics

Just wondering how many of you have a family history of Multiple Sclerosis like we do in my family. My big sister was first diagnosed with MS, then myself in 2011, followed by my big brother in 2021. Sadly we all watched the disease take my Mum in 2023 which was utterly terrifying. My twin has Lupus...

@Ice 

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Ice

Walker/wheelchair

I have been using an upright walker for the past 10 years. I am now at that stage in my progression where i dont feel as stable as i used to. A good friend of mine's step father just passed away and he gave me his step fathers powered wheelchair. It was basically brand new. His step father hadnt eve...

@SSendling 

EditedLast reply

SSendling

Kesimpta

Hi everyone! Just a quick question, any of you felt like your syptoms got worse after starting treatment? Or is it just me? Since I started my treatments back in June I’ve developed foot drop and my legs seem to never stop aching now. Just curious if anyone else has dealt with anything like this. Ho...
Kingwood, United States

@paddymac999 

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paddymac999

Disheartening

I have PPMS and my physio tells me that its all the same how much I exercise. My disability will not improve one bit. I really hope that she is wrong

@Bdso98 

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Bdso98

Anyone here on Lembrada?

Hi everyone. Just found out about this app today. I was diagnosed in 2021 and after 2 DMTs, had to take a more aggressive approach with Lemtrada since the previous two didn't seem to be working. Anyone here wanting to share their Lemtrada journey? FYI: the other two that didn't work were Tysabri an...

@KevaW 

EditedLast reply

KevaW

Flu

Did anyone get their flu shot yet?...I was told that I had to wait 1 to 2 weeks after I took my Kesimpta injection,I get my flu shot every year..but I did just get diagnosed last year in September with MS

@ashia2013 

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ashia2013

Stopping Fingolimod to change DMT, weird side effects?

Really random but I’m switching from Fingolimod (Gilyena) to Cladribine. Been off Fingolimod a couple of weeks and feel extremely weak, light headed and just zero energy. Proper strange and thought it would stay in my system for four weeks. Is this normal or just me being paranoid

@Bdso98 

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Bdso98

Struggling to find someone

I wanted to share something personal, maybe someone can relate. Since my diagnosis, and the first symptoms, I feel like it's almost impossible to go on dates. My MS is not that invisible right now because i depend on crutches for long walks (a year ago didn't need it). I feel like that's immediately...

@Layla77 

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Layla77

MS getting worse

My Ms has gotten much worse over the last 3 years but not had a relapse. Why is this happening?