I just wanted to say hello. I'm relatively new to the world of MS and was diagnosed last August. It's definitely been a wild journey this past year full of ups and downs.

So I just started Ocrevus today and I know the premeds and such but has anyone else’s throat start to close and they just shoot up benadryl and wait half hour and then keep going? I’m coming from tysabri which I was one of the people who has been on it the longest without PML or JCV.. so after 13 ye...

It’s officially been one year since MS barged into my life completely uninvited. Worst. Houseguest. Ever. While this disease has tested me in more ways than I can count, it hasn’t taken my humor, my stubbornness, or the people I love. So here’s to another year of doing life anyway - even if MS insis...

Hello, I’m really new with everything and I’ve let the dvla know about my ms diagnosis. They asked a question on there about fatigue and if I’m honest I must not have read it right or understood when they were talking about fatigue. So I said yes to the fatigue question and now they have revoked my ...

I just spoke with HR about increasing my FMLA due to new worsening of some symptoms. Mind you this is a RN in HR ... She asked if it's this a lifelong illness? Then same conversation "I have a friend with MS that does the infusions too and he's doing very well". .... If she could have seen the look ...

Hey! I am struggling with my neurologist team. Ive been chasing my mri results for my 6 month check in since 1st march but getting nowhere! Also my ms nurse said i need my 6 months bloods etc but doesn’t book me on yet my mum called up n got one for next week!! I am loosing my patience.. surely it ...

Went out Friday night for live music with some friends. Had a great time!! Woke up Saturday with cellulitis. My leg didn’t like the mosquito bites it got. So now on antibiotics and steroid cream. Which really sucks because treatment is next week so it’ll be pushing my date back a few weeks so I’m ...

How do I ask for reasonable adjustments at work? As the time has passed I think I am getting worse than I was before. So I feel the need to ask for some adjustments at work. (I was working for the same place before I was diagnosed) I work in a bakery shop and I work as a cook. I don’t really know ho...