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@ashia2013 

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ashia2013

Family History/Genetics

Just wondering how many of you have a family history of Multiple Sclerosis like we do in my family. My big sister was first diagnosed with MS, then myself in 2011, followed by my big brother in 2021. Sadly we all watched the disease take my Mum in 2023 which was utterly terrifying. My twin has Lupus...

@ashia2013 

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ashia2013

Stopping Fingolimod to change DMT, weird side effects?

Really random but I’m switching from Fingolimod (Gilyena) to Cladribine. Been off Fingolimod a couple of weeks and feel extremely weak, light headed and just zero energy. Proper strange and thought it would stay in my system for four weeks. Is this normal or just me being paranoid

@paddymac999 

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paddymac999

Disheartening

I have PPMS and my physio tells me that its all the same how much I exercise. My disability will not improve one bit. I really hope that she is wrong

@Beamiddy 

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Beamiddy

Weird stupid symptoms

I’ve broken the top of my foot, but can’t really feel anything, but the end of my thumb is screaming like there’s a pin under my nail even though it’s fine. I feel like I’ve got a uti, but I haven’t. I’m so tired, and I have to do my Kesimpta tonight. Generally feeling really fed up and just need a ...

@Krowens 

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Krowens

Body jerks? Newly diagnosed

I am very newly diagnosed. I have started experiencing more body jerks. It’s my upper torso and legs, sometimes including my shoulders and arms at the same time. I’ve always had my legs do it, but now it’s getting more aggressive and moving in my stomach and upper body. It’s quick and very annoying....

@Mondaygirl22 

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Mondaygirl22

Kesimpta

How many other people are having sore upper arms since starting Kesimpta ? Because my arms did not hurt before I started taking Kesimpta and now they’re so sore and they seem to like get so hard and tight muscles and I’m fearful of where else that can go or happen or what else It could do to my bod...

@ruari 

EditedLast reply

ruari

Here’s a weird one

I’m a tv editor and I work on a UK show called ‘Sort Your Life Out’ where families in need of help have their houses organised and declutterred by a team of experts to bring back the love for their homes they once had. The episode I started yesterday came as a bit of a shock because the family have ...

@Bdso98 

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Bdso98

Anyone here on Lembrada?

Hi everyone. Just found out about this app today. I was diagnosed in 2021 and after 2 DMTs, had to take a more aggressive approach with Lemtrada since the previous two didn't seem to be working. Anyone here wanting to share their Lemtrada journey? FYI: the other two that didn't work were Tysabri an...