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@Tomtom52 

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Tomtom52

Got fitted for footdrop brace today

I’m so excited to be giving my foot drop brace even though they said it won’t be back for two weeks . This around the time I’m taking New MS drops hopefully, I won’t need It.

@Kendronicus 

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Kendronicus

Fatigue? Or something else?

I had my second dose of Ocrevus a week ago today. I’ve been pretty tired ever since but even more so today. I also feel weak and kinda like I have a fever- but I don’t, my temperature is normal. I had to leave work today because I got so lightheaded and short of breath. (I have a pretty active job...

@Zainab 

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Zainab

Clonus and tremors

Hi gang, A fairly new symptom I’ve added to my collection is uncontrollable shakes and bounces…started on Baclofen for this but can’t really see that it’s doing much to be honest. What are people doing to manage this? Any information/ guidance will be greatly appreciated. Zainab
London, United Kingdom

Constant Vertigo

Does anyone ever have issues with this? I went into the ER years ago and they told me I had labyrinthitis. Its supposed to be temporary based on standing up and movement and only a one time thing, but I've had three times in the past few years where everything was just spinning like a fun house tunn...

Spasticity & Kesimpta

Hi guys I’ve recently been diagnosed with MS so still coming to terms with my diagnosis. I’ve been experiencing spasticity in both legs for a few weeks now. I’m wondering, when I start taking Kesimpta, will the spasticity I’ve been experiencing start to ease? I’ve started taking magnesium and a...

@craws 

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craws

Spinal tap

Hi I am new to this app and wanted to get some feedback, I have to get my first spinal tap this week and wanted to get some advice on what to expect and how to best prepare. Thank you in advance any help would be much appreciated
West Chester, United States

@DandalftheWise 

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DandalftheWise

48 hours since my first Kesimpta dose

About 8 hours in i started getting the flu like symptoms, but they subsided by 24 hours. Anxiety is definitely gone for my next injection

@jellysheep 

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jellysheep

Disruption of menstrual cycle after the first anti-CD20 infusion?

Hey, has anyone experienced a really early period (or early ‘withdrawal bleed, if on HRT) after the first round of an anti-CD20 therapy? I’m bleeding a whole week early, and this is unusual because my cycle is always fairly regular. The only thing that’s been different in my life is the infusion of...

@YogaLady 

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YogaLady

Feelings

Do you hate when people ask you if you’re ok? And you say yeah I’m ok thank you ☺️ but you’re not ok inside you? Find that frustrating!!!!! 😤