I started baclofen last week, initially 5mg once a day (evening), increased to 10mg today, for horrible right leg spasms in the evening. The MS nurses warned me it might make weakness more obvious but I didn't think anything of it as wasn't aware of any weakness. Went for a run today, my right leg n...

I can’t believe I was total excited to start this medication and taking it faithfully in hopes it would help me walk. Instead my current symptoms that I had got worse. I feel horrible and this was such a set back for me. I stop taking it. I only have my infusion twice a year with Ocrevus. I just tho...

I was diagnosed in August 2025, so this is all still new to me. I’m doing the best I can, listening to my body and trying not to feel overwhelmed. Most days I’m okay. Today hit me kind of hard. I got to work today and saw a fellow coworker (who also has MS) that I haven’t seen in months. I won’t go...

Currently going through Ill Health Retirement process with my employer. Employer is a large government led organization Initially looked at redeployment but i have chosen not to pursue this due to progessiveness of MS. I believe i require legal representation, keep coming up against dead ends when...

It amazes me how slow disability is taking. I mean I have a disability lawyer for my disability and yet it still taking forever. 💯 And what kills me is MS doesn't stop because disability is slow. My MS seems to worsen the slower they are actually. Tingling in feet, next day tingling in legs and the...

How bad is secondary progressive ms? Be cause I feel like I'm going down fast! My left side is getting worse. I'm so scared to start meds because of all the side affects plus I am a heart patient I take alot of heart meds and 2 blood thinners. I really dont think there's much out there that's going...

Does anyone also get random blood pressure readings? Like it can be fine, Then all of a sudden your heart start racing? Just took mine and it was off the roof. Does anyone else ever have that experience?