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@GED 

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GED

The loneliness hit me like a train,

just need to get this off my chest because it’s hit me like a train today. I had to stop working a few years ago. I volunteer when I can but I’ve realised I don’t actually have any friends anymore. The people I volunteer with are lovely, but they’re mostly a lot older than me, so we’re just not rea...

@scfarris74 

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scfarris74

How often should a MRI be completed?

Good afternoon and Happy Holidays. Just wondering how often an MRI should be done by your Neurologist? I was diagnosed 2 years ago while hospitalized, and none have been done in the interim. Thank you, Scott

@GED 

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GED

Sativex advice

Hey, my MS team have referred me to start Sativex as nothing else has helped ease the spasms or muscle pain. Have you been on this? What’s your thoughts, did it help, did you have any side effects? It’s a new one for me so it would be great to hear your experiences. Thanks so much, Diagnosed 202...

@Donnalew 

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Donnalew

Vitamin d

My neurologist said I need to take vitamin d tablets alongside my treatment, do you take vitamin d tablets and if so which ones 😊

@hillcathyr 

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hillcathyr

Palliative Care

So I was diagnosed with RRMS "officially" in August of 2025. In April 2026, the Dr told me we were going to try Truxima. It took a month for the insurance to approve. Sadly, I had an allergic reaction. Then we tried Ocrevus and the same thing happened, an allergic reaction. So it's now July and we...

@jackieo66 

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jackieo66

Eyes

I often have an issue with my eyes where they burn like they’re on fire and the slightest amount of light immediately makes me close them I use lubricanting eye drops which sometimes help a little the best way I can describe it is when you get your eyes dilated except the light isn’t as intense but ...