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@SChaudhry 

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SChaudhry

Energy drinks

Does anyone else with MS find that energy drinks, like Red Bull, give them enough energy to get through daily tasks? I've noticed they give me a boost, but I'm wondering if this is common or if they can make MS symptoms worse in the long run. I'd be interested to hear about your experiences and whe...

@Lottiiee 

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Lottiiee

Denied DMT

I live in the north west england UK and I was diagnosed with RRMS in 2022. Since then I have been denied DMTs despite requesting every time I see my Nuerologist. Since diagnosis I have decorated ALOT I have had quite a few attacks (each has gave me a lovely new symptom). But when ever I see my neuro...

@Robs79 

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Robs79

Early Retirement due to MS

Hey All, it’s been such a long time since I have posted on here. I have been mulling it over in my head to claim Early Retirement due to medical reasons that being my MS and was wondering if anyone has done this before with their MS? I can’t physically do the Warehouse work anymore as having 2 days ...

Reminder to myself

Due to take kesimpta on 07/07/2026 Delivery of kesimpta 20th 07/2026 an please don't take it personal, that i don't like to be online all time

@junee 

Last reply

junee

Appointment questions before starting treatment

Finally have an appointment to start conversation about what treatment to have. I’m looking at Ocrevus and hoping they’ll agree. Is there any questions you wish you would’ve asked before starting treatment? Or that you would recomend asking? Currently i have: - will there be any additional tests b...

@Historicus 

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Historicus

Palliative care?

Has anyone here added palliative care to their team for helping with stress and symptom management? I have an outstanding neurologist. My PCP is great. I have good mental health support. But I am navigating some anemia and nutrition issues (about to start with a hematologist and a nutritionist) and ...

@Angie03 

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Angie03

6 months check results

Finally got my mri and blood tests results back!! All is normal and looking like kesimpta is working 🙌 🙌

@gabbie82 

EditedLast reply

gabbie82

Kesimpta second loading dose

Hey guys, I am feeling all of a panic this evening. I did my second loading dose and I think I released pressure too early as there was some liquid on my leg after. I'm worried i didn't get my dose 😭😭😭

@duvals2005 

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duvals2005

Ughhhhh

I just warmed up a plate of food and decided to take a bite. Well in the mist of me taking a bite the plate fell out my hands and some of the juices from the pasta hit my leg and i fell in the pasta on the floor.. i just started crying on the floor like why me while cleaning the mess i just made all...

Pain to Power

Some days I wake up fighting battles no one sees, Smiling through the silence while the storm lives inside me. Every step feels heavier than yesterday before, But I keep on believing there's a reason to endure. Doctors, pills, and endless waiting, Dreams delayed but not escaping. Life kept changing ...