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@bless1karl 

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bless1karl

Going on a date...

Should I tell her I have this disease?...it is the least most interesting thing about me...

@Purps 

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Purps

Navigating the NHS

I got and MRI last October, after 4 years of my opthalmologist pushing for one. Then saw a non-specialist neurologist in June who said my demyelination was most likely due to MS. And now I'm just waiting for a referral on to another MRI and specialist MS neurologist. How long did everyone else hav...

@Donnalew 

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Donnalew

Swimming

Been swimming for the first time tonight since my really bad flare up in March and my diagnosis in July and I used to do between 30 and 50 lengths but could only manage 4 lengths and I'm exhausted

@ruari 

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ruari

Swimming 500 metres and 10k walk home

Have a week off in between contracts and have been using the lido. Haven’t swam in 2 years but did 10 lengths in the slow lane this morning and walked home 10k . Feel so good for it. Amazing how it makes my ms symptoms feel lighter. Have signed up for a membership so am going to try and get a few s...

@Diedre78 

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Diedre78

Bladder / Bowel urgency

Hey. I am working with a practioner who suggested making friends with other MSers with either bowel or bladder urgencies (I seem to have both). Sharing stories. Normalise the topic. Understanding each other. And so on. Anyone?

@Jack123 

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Jack123

Crap gap

Hi everyone. Im starting to feel very fatigued lately and im getting my next infusion in September. Any tips or tricks on how to deal with the crap gap?

MS Dictionary (The Version Your Neurologist Forgot to Print)

RRMS (Relapsing Remitting MS) "The world's worst game of Whac-A-Mole." Symptoms pop up, disappear, then six months later turn up wearing a fake moustache. PPMS (Primary Progressive MS) Like downloading an update... except it's always stuck at "Installing... 17%" and nobody knows when it'll finish. ...