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@Beiersdorf 

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Beiersdorf

AGE

Just curious, how old are y'all when you were first diagnosed???

@mdS 

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mdS

Diagnosis Questioned

My neurologist appointment Monday was crazy!! A while back I had an MRI from orthopedics. It was in question because they identified another lesion. Monday my neurologist finally reviewed everything and said that it wasn't a lesion. They are unsure what it is but needed to know ASAP. She said that i...

@NeuroPulse 

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NeuroPulse

Joseph (Genesis 37–50) Mind set

I want to take a moment to say a prayer for Phyllis Motta from the National MS Society. Lord, I pray that You guide Phyllis and lead her to the right people, the right connections, and the right opportunities to help move ideas that can make a difference for people living with MS. Give her wisdom,...

@alisoncameron20 

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alisoncameron20

Fatigue off the scale

Ten years on from diagnosis and fortunately annual MRI scans show condition is stable. The fatigue is getting worse though. Trying to motivate myself is an ongoing battle. Tired of explaining myself. The Oscar winning performance of putting on the smile, being positive and cheerful when all I want t...

@pockets 

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pockets

Insomnia

It’s 2am here in the uk. Just wondering if anyone else suffers from insomnia
Lowestoft, United Kingdom

@ruari 

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ruari

Swimming 500 metres and 10k walk home

Have a week off in between contracts and have been using the lido. Haven’t swam in 2 years but did 10 lengths in the slow lane this morning and walked home 10k . Feel so good for it. Amazing how it makes my ms symptoms feel lighter. Have signed up for a membership so am going to try and get a few s...

@S_777 

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S_777

Disability badge

I was rejected AGAIN... I was rejected initially & I appealed with neuro & ms & dr letters! I even had a fall recently with bruising to knees& bled & I sent my neuro's new recent letter update about new lesion & a MRI & images following my fall... They still rejected me for the disability badge App...

@Helen_Weeks 

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Helen_Weeks

Fampridine

Has anybody got or enquired about having fampridine privately? I am on a waiting list since Friday but my walking is becoming worse and my EDSS is 6.5 and I’m worried if I wait I won’t be eligible as l ll probably be 7 when it’s available on nhs