Hi first post - very recently diagnosed consultants comments whilst in hospital were ‘I think this has been going on for a very long time’ at the time I didn’t know what, now I do. Neurologist confined diagnosis and gave me a count of 23 in my brain with one active and 3 in my spine with one active...

I'm listening to my 90s mixes and a song came on that is 100% relatable to our MS life.. Bad Day by Fuel What's your MS song?

Diagnosed last week, still coming to terms with it all. What would you all have said to yourselves when you were at the start of your journey? I was thinking of kesimpta, is that a good start for my 1st DMT? Thanks all

So I am expecting the return of my MS symptoms because I just had a miscarriage and I know that MS symptoms can intensify after giving birth or a miscarriage. 😭💔 Not only does my body hurt but now so does my heart.

🧡 - mine depends on my mood 🫣 🧡🍀💪✊👍😬🙄🤬🤞😤😴🫩🫪🤘🤏

When I say everything is hurting 1st thing my mom says is do more exercises. Hell I have a leason on my spine so I am always in pain

So last week I saw my MS Dr. After a decade of being told it's definitely PPMS, she says maybe not. Maybe I just said PPMS so you'd get into their medical trials. Maybe it's this new kind we're talking about called Primary Relapsing MS (PRMS). WTF is PRMS now? Are we just making stuff up as we go a...

Hello everyone! I’m not new here, but this is my first time posting. I was diagnosed with MS in 2022 and, after disease progression in 2024, I was switched to Ocrevus. About 2.5 weeks ago, I started experiencing nerve pain and numbness. It initially started in my right hand, then spread to my neck,...

Hi everyone 🤍 I have a doctor’s appointment today and I’m strongly considering starting Tysabri. I’m JCV negative, so right now it feels like a strong option, but I’m still nervous and trying to make sure I ask all the right questions. For those of you on Tysabri (or who considered it), what ques...

Hi All, just wondering if anyone has any idea how I go around organising a charity event? Ive got something in mind with a couple of friends, how do you go about organising things, with regards to funding, planning etc? Do you do it all yourself? Are there people/organisations that help? Etc. New(is...