People often ask how I'm doing, and it's hard to explain that I look fine on the outside while my internal battery is sitting at 4%. Invisible illness is a masterclass in masking. How do you usually describe your energy levels to people who just don't get it? 🔋

One minute, I’m ready to get things done. The next, I’m standing in a room wondering why I came in there in the first place. I’m learning to laugh at some moments without pretending the difficult ones don’t exist. if your MS had a personality, what would you name it? And what would its most annoyi...

I didn’t last long (8 weeks)!! I thought I was doing okay, but they were pushing me out. Therefore, I resigned before they sacked me! It was an ideal job, charity company too!

Has anyone ended up getting/considered a breakup after getting diagnosed? Did anyone’s partner just stopped caring after seeing some type of improvement? In my case when I first got ny diagnosis I told my husband that if he wanted I would sign the divorce papers (I’m 28 he’s 40, Im the one who work...

Hi all, I was diagnosed in 2015, hit rock bottom in 2022 and couldn’t walk more than 100m. Ocrevus changed my life and I ran my first 10k yesterday. Any other MS’rs run? Looking for inspiration to do a half marathon and to spread a bit of positivity that if I can do it, anyone can! I’m not fixed bu...

This guy just brushs off everything I say.tell him, i stuck my hand in a 160° water couldn't feel it. My right leg is 2 inches bigger around then my left leg. I'm in constant pain, oh and i have episodes where i cant breathe and need oxygen. His response? Oh, your scans are fine so you're just fine...

How are you really doing today? Not the automatic “I'm fine” answer, but the honest one. I'm learning that it's okay not to have everything figured out straight away. Sometimes you just need a little time and people you can talk to. What's your mood today in just three words?

My neurologist is looking to start me on Ocrevus soon. I was diagnosed with MS about six weeks ago. Today my neurologist and I discussed what DMT I am going to start. She wants me to start on Ocrevus IV infusion depending on approval from insurance which hopefully will happen within the next two wee...