Looking for insight and wisdom. First time posting. Also very newly diagnosed and then re-diagnosed via Mayo Clinic. Anyone else test positive for the markers for vasculitis? P-ANCA, MPO? I have definitive lesions that are clearly MS but my labs keep showing these antibody markers for vasculitis a...

Hey everyone I’ve not posted for a while as everthing has been not too bad. Recently my bowel movements have been weired, it’s as if I can’t finish empty my bowels at once n its a bout 5 times in a row in a short space of time and I would say a good amount each time with no cause of concern just the...

It doesn’t have to be about MS. It could be about relationships, friendships, confidence, work, or learning to give yourself a little more grace. I’m curious about the lessons life has taught everyone here. 💙

I carried my siponimod tablets around Barcelona in very hot weather on my 40th birthday. I saw on box not to store over 25 degrees and so since this time (4 years ago!!!) I have kept it in fridge. Today I have read that keeping opened boxes in the fridge can make the medication less effective and ...

Hello ! I got diagnosed last week with RMS. I don’t know how to feel, I knew the diagnosis was coming since my first MRI which I got because of a bulging disc. I have been told I’m being diagnosed the “wrong” way as normally people get diagnosed after they experience vision problems. I hate when p...

Currently in Crete visiting friends and the summer season is pretty much ober but the 'cannibis' shop i go to has closed early so been trawling every since I got here to find summit to help with the pain😏. Come across a small shop that do vapes an edibles but looked like they sold out but explained...

So I had a bad fall back in mid-August. Broke my nose and got a concussion (I think, because I didn't go to the doctor). My husband put his foot down and took away the walker. I've been in the wheelchair full time since. And it's been a huge adjustment, not going to lie. I've gotten good at managing...

I’m a tv editor and I work on a UK show called ‘Sort Your Life Out’ where families in need of help have their houses organised and declutterred by a team of experts to bring back the love for their homes they once had. The episode I started yesterday came as a bit of a shock because the family have ...

Do you ever feel like MS is now your identity, after all these years it’s all making sense what all these symptoms were like a jigsaw puzzle being solved. I was diagnosed October 2025 and my DMT is currently on hold until my angioedema/urticaria flare ups stop..