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@SoniaG236 

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SoniaG236

Duration of MS

Is MS a long term condition like Parkinson's? I had thought that it was until I saw a few comments recently on here where people said that their Neurologist had said that their MS had gone. Is it to much to hope that it clears up after say 10/15 years? Or is it that MS treats everyone differently?

@sophiemg 

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sophiemg

LP tomorrow!

Hi guys, I have my lumbar puncture tomorrow. Any last minute tips? I’ve heard drink coffee and Coca Cola beforehand! Many thanks in advance!

@Niccole 

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Niccole

Mavenclad

Has anyone taken it? What experiences have you had?

How’s the weather treating you?

So of course here in Texas it gets really hot so my body gets fatigue. But now since the weather is changing and it’s getting nice and cool I am feeling more sluggish and drain. I feel like I just want to sleep more to gain my energy back has anyone ever felt like that?

@laura1431 

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laura1431

Reasonable adjustments in a new job

I've reached the final stage of an interview process for a job that requires some office attendance and travel. The team don't know about my MS yet and I'm wondering if anyone has any experience of how to move forward with that if get an offer? I don't mind balancing a little travel but it's not sus...

@Chrisssberm 

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Chrisssberm

Big Question with Symptoms

I’m not sure if it’s part of MS but has anyone experienced any problem on their stomach, when like trying to go to sleep and it starts to rumble and make noises as if you were hungry!? 😣I’ve been having this problem for a minute now, but any suggestions

@ashia2013 

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ashia2013

Drug company NIGHTMARE!!!!

I am literally disgusted in my care for my MS. I came off Fingolimod almost four weeks ago. The Cladribine nurses were meant to come out last Wednesday to carry out blood tests but disputed that I didn’t have the correct blood test forms from Addenbrokes. I then had to collaborate with the MS nurse ...

@ashia2013 

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ashia2013

Family History/Genetics

Just wondering how many of you have a family history of Multiple Sclerosis like we do in my family. My big sister was first diagnosed with MS, then myself in 2011, followed by my big brother in 2021. Sadly we all watched the disease take my Mum in 2023 which was utterly terrifying. My twin has Lupus...

@Sylvester 

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Sylvester

Ocrevus subcutaneous injection - still feeling ordinary day 4

So this is my 2nd Ocrevus injection (I went straight to SC never had the infusion) and the after affects lays me up for nearly a week! This time particularly I’ve felt really tired, puffy and red faced, then sore lymph glands, feeling aching and fluey and a sore throat, along with brain fog, irritab...

@mskitty 

EditedLast reply

mskitty

Getting used to my New Normal

So I had a bad fall back in mid-August. Broke my nose and got a concussion (I think, because I didn't go to the doctor). My husband put his foot down and took away the walker. I've been in the wheelchair full time since. And it's been a huge adjustment, not going to lie. I've gotten good at managing...