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@abrhym1 

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abrhym1

🩶 حين لا يبدو عليك المرض | When You Don't Look Sick

🇬🇧 English The hardest part is that I can look completely fine while struggling with things I can't even explain. People see me standing, smiling, and going about my day. They don't see the effort it takes just to get through it. 🇸🇦 العربية أصعب ما في الأمر أن أبدو بخير تمامًا، بينما أعاني من...

@89scott 

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89scott

Misdiagnosed

Anyone seen the christina applegate news saying she was misdiagnosed? Makes you wonder how many of us are misdiagnosed 🤔

@abrhym1 

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abrhym1

🖤 جسدي الذي لم يعد كما كان///A Body That No Longer Feels the Same

🇬🇧 English Living with MS means learning that your body can feel unfamiliar even when nothing looks different from the outside. You want to walk normally, move freely, and live without thinking twice about every step. But sometimes, your own body reminds you that things are no longer as simple as...

@rooneyleoni 

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rooneyleoni

On days when the fatigue is loud, my comfort toolkit comes out

Heavy blankets, a specific playlist, and absolute zero expectations to be productive. What is your holy-grail comfort item on heavy-fatigue days? Drop recommendations below! 🎧🛌

@louisaanker 

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louisaanker

HAIR LOSS

Has anyone experienced hair thinning whilst on Ocrevus infusions please. I have RRMS, 5th cycle of ocrevus in December.

@solomon 

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solomon

Can we have a completely unserious conversation today? 😂

What's one tiny thing that can ruin your mood faster than it has any right to? Bad Wi-Fi? Someone chewing too loudly? A phone battery on 2% when you need it most? 😭 Let's give our brains a break from serious conversations for a minute. What's yours?

@emmaodonovann 

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emmaodonovann

Newly Diagnosed

Hello ! I got diagnosed last week with RMS. I don’t know how to feel, I knew the diagnosis was coming since my first MRI which I got because of a bulging disc. I have been told I’m being diagnosed the “wrong” way as normally people get diagnosed after they experience vision problems. I hate when p...

@Roland51487 

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Roland51487

Soreness

So before I call my doctor, I decided to come to the community and seek some advice. In April I was diagnosed with ms. They found a lesion on my spine and after a spinal tap confirmed ms. In June and July I took Mavenclad for the first time. I’ve had mild fatigue and dizzy spells since. Since last ...

@MorganB 

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MorganB

Misdiagnosed?

Does anybody follow Christina Applegate and her story? I just read that she was misdiagnosed and doesn’t have MS. Idk what to think

@sophiemg 

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sophiemg

LP tomorrow!

Hi guys, I have my lumbar puncture tomorrow. Any last minute tips? I’ve heard drink coffee and Coca Cola beforehand! Many thanks in advance!