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@Henrietta 

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Henrietta

Fampridine

Had a physio appointment today at my hospital in central London so obviously I asked about Fampridine. Here are a few things which may be relevant for other people in England: - Yes everyone is asking for it! - As it’s just gone off patent it will be the generic version and will take a while for pr...

@CrybabyYari 

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CrybabyYari

Taking charge and staying fine: Never forget we’re MS baddies ✨

Living with MS means managing a lot—symptoms, doctor visits, bad days, and everything in between. But managing this condition doesn't mean we stop caring for ourselves or feeling good in our own skin. Whether that means putting on your favorite outfit, doing a full skincare routine, or just getting ...

@Henrietta 

EditedLast reply

Henrietta

Question for people on Mavenclad

I’m on day 3 of the first week of the second year. Last year I didn’t have any side effects but it’s absolutely wiping me out this time, I’ve never felt so exhausted. Can anyone relate? I’m assuming it’s the Mavenclad but 🤷‍♀️

@msee100 

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msee100

What song reminds you of an MRI?

Cars by Gary Numan, especially the eerie high notes make it my top pick. Any others…

@itsemma 

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itsemma

Most annoying thing about MS?

I think a lot about my diagnosis.. the physical stuff is bad, the mental stuff is bad, people don’t seem to understand. What’s on the top of your list?

@Julia99 

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Julia99

Question

Hey Everyone does anyone feels a need for a chair in the shower? Or it just me.

@Ewoz 

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Ewoz

Complaining about MS nurse

Hi everyone I just wondered if anyone can help me? I seem to be having issues with getting a date for my DMT due this month? Iv been diagnosed since 2019 & started my currant medication in 2020 I take ocrevous every 6 months and used to be under Leeds clinic where they were very good at looking af...