I was in hospital on New Year's Eve on the stroke ward following an MRI. This then led to a referral to Neurology who are confident that I have MS. I was given a course of steroids for 5 days and things had somewhat gone back to normal. Was symtom free for 5 days whilst fighting a cold and conjuncti...

I feel alone in this world, I do. I was diagnosed when I was 21, been on disability since, live with my ma. My life has never gotten any better at all, never had a chance at life, every woman in my life has ruined my expectations of love, marriage, never been married. Life took a crashing hold for m...

How did it make you feel? I look up and see Christina Applegate and then her discussion of ms and how it sucks, then she goes on to list some symptoms (fatigue pain). I felt really seen, but at the same time I could feel the tension in the room. Everyone got quiet and I could feel their discomfort a...

I was diagnosed in 2023 and throughout that process I maintained employment at my current part time job. I generally over deliver at work (clearly to my detriment) and I’m trying to advocate better for myself and my illness. However I think because people don’t see the fatigue after work days, or th...

What names have you been called or what have you been told when you have fatigue, want to sleep in, or are too tired to do things that involve exercise? I’ve been called “lazy” many times when I want to sleep in past 6 am on the weekends and not go to the gym right away (I will get up eventually a...

Had a scan of my bladder today and was surprised by the result. I though I was retaining urine (some hesitency to urinate, weak flow, feeling like i've not fully emptied my bladder - like ever!). However, I had 90 mils of urine in my bladder which was apparently fine (i'd been the loo about an h...

Whatever i seem to do to try help myself i just end up with pain or fatigue im feeling so fed up today. I wake up stiff in pain fuzzy head then fight it all day then go to bed with foot spasms neck ache spre ankles. Just needed a moan really.

Just bought tickets for Womad Glasgow in July. My life has become very insular since my diagnosis in 3023 so I made a spur of the moment decision and bought the tickets so I'll heading to a festival in July 😊. Fortunately it's not a camping festival so there'll be a nice apartment to return to at ...