Hey! I am struggling with my neurologist team. Ive been chasing my mri results for my 6 month check in since 1st march but getting nowhere! Also my ms nurse said i need my 6 months bloods etc but doesn’t book me on yet my mum called up n got one for next week!! I am loosing my patience.. surely it ...

Cold plunges have been an absolute lifesaver in this UK heatwave. They cool your core down fast and can leave you feeling refreshed for a while afterwards. Just don't go full polar bear and freeze your nuts off. 😅 A few minutes is plenty. Cool enough to beat the heat, not audition for a frozen fish...

Does anyone take probiotics? After my steroid and 1st briumvi infusion I am feeling drained, constipated and bloated +++. Ive ordered a month's worth of probiotic drinks to see if it helps because I am so uncomfortable in my skin right now!

How do I ask for reasonable adjustments at work? As the time has passed I think I am getting worse than I was before. So I feel the need to ask for some adjustments at work. (I was working for the same place before I was diagnosed) I work in a bakery shop and I work as a cook. I don’t really know ho...

Has anyone here added palliative care to their team for helping with stress and symptom management? I have an outstanding neurologist. My PCP is great. I have good mental health support. But I am navigating some anemia and nutrition issues (about to start with a hematologist and a nutritionist) and ...

I was telling someone about my MS diagnosis, saying that it has been lifechanging for me. Briefly listed up some symptoms eg weakness in legs, poor balance, fatigue. Her comment: I have exactly the same, it comes with menopause and ageing, we all have to go through it. Anyone recognises this? And w...

Hey All, it’s been such a long time since I have posted on here. I have been mulling it over in my head to claim Early Retirement due to medical reasons that being my MS and was wondering if anyone has done this before with their MS? I can’t physically do the Warehouse work anymore as having 2 days ...

I feel like the way my legs are having spasticity, making it difficult to walk will never go away. No matter how much I exercises. Will I always be fighting the spasticity or is it something I can get rid of? I take baclofen already. I'm sick of being at 6 - 6.5 on the disability scale and been ther...