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@msaltgirl 

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msaltgirl

Vaccinations before starting treatment

Hey, what vaccinations did you have before starting treatment? I’ve had 2 doses of shingles vaccine and I start kesimpta next week…

@hotdogprincess 

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hotdogprincess

Relapse recovery

I'm in the tail end of a relapse and starting to feel a bit more like me. I have new lesions on my spine, which have rendered my thigh pretty much useless. How do you begin to recover and build muscle again? I'm so scared of the unpredictability of my body and don't trust it anymore but itching to s...

@taebreezyyyy 

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taebreezyyyy

I’m Scared…

I am so sickk of this disease. It takes and ruins everything. I’m terrified. My whole body aches, and I have an excruciatingly painful knot in my neck. When does it ever end?

@elev 

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elev

Phantom smells? Anyone else experiencing issues with smells?

I’ve been having this weird issue with my sense of smell. Anytime I’m around a strong smell, like coffee or cooking, it seems to trigger this cigarette/smoky smell in my nose that I get stuck with for the rest of the day. Most of the time it doesn’t go away until the next day, and sometimes it can ...

@AUKGuy69 

EditedLast reply

AUKGuy69

Spouses

Thought I'd join this community to see what help there is for spouses. Got an answer immediately when no option given for wives, husbands or partners. Just "I know someone" and "other". Fantastic way to reinforce how invisible, solated and worthless we are. Btw, 20 years plus supporting my wife.

@Laur3n89 

EditedLast reply

Laur3n89

Constant nerve pain!!

I have constant burning in my left leg!! I’m on 2100mg of gabapentin a day and I have 4 weekly injections of Natalizumab (Tysabri) Is there anything I can do to stop the pain?? I’m unable to walk far I feel like a slob all I do is sit on my sofa with my feet up. This isn’t a life!!! 😭

Ideas of Medications ?

Since having this MS stingers/zingers . Does anyone take certain medications that won’t interfere with some medications you take ? I used to take gabapentin but stopped long ago . Since being on Alprazolam(anxiety) pills for years it’s hard to find a medication that won’t be dangerous to help with...

@Synapse 

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Synapse

Support for families

Does anybody know if there is any support network to support immediate love ones through this journey I’m on. I don’t recall seeing anything discussing Impact on close family and strain on those around me. Any support networks out there? (I’m UK based)

@madisnowball 

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madisnowball

Kesimpta ‘crap gap’??

I have been on kesimpta just over a year now and the past couple months I have noticed a few days before my next injection is due, I just feel very ‘off’. Tired, not 100%. Is there such thing as a crap gap on kesimpta if anyone else experiences similar? I plan on mentioning to my neurologist on Mond...

@bigAlreeves 

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bigAlreeves

My kids don’t deserve this.

I lived across three states Missouri Arkansas and Illinois when I was younger and I hate Having to be sick to the extent I can’t even get out of bed. They should be out there like me when I was younger not deliberately buying their properties as close as possible to mine is simply because they are w...