RRMS (Relapsing Remitting MS) "The world's worst game of Whac-A-Mole." Symptoms pop up, disappear, then six months later turn up wearing a fake moustache. PPMS (Primary Progressive MS) Like downloading an update... except it's always stuck at "Installing... 17%" and nobody knows when it'll finish. ...

My neurologist appointment Monday was crazy!! A while back I had an MRI from orthopedics. It was in question because they identified another lesion. Monday my neurologist finally reviewed everything and said that it wasn't a lesion. They are unsure what it is but needed to know ASAP. She said that i...

What’s one little thing you do for yourself to find a bit of joy while managing MS? For me, it’s watching a funny movie or comedy special — laughing always lifts my spirits. I’d love to hear about your little joys.

Hi there I was wondering what area everyone is at to see if I can find some local friends for meet ups etc Any body welcome though 🥰xx

Ten years on from diagnosis and fortunately annual MRI scans show condition is stable. The fatigue is getting worse though. Trying to motivate myself is an ongoing battle. Tired of explaining myself. The Oscar winning performance of putting on the smile, being positive and cheerful when all I want t...

Just curious, how old are y'all when you were first diagnosed???

MYELIN MANN – EPISODE 1: THE SIGNAL Marcus was just an ordinary guy trying to make it through the day. Then one morning, his legs felt like concrete. His vision blurred. His body wasn’t listening. Doctors gave it a name: Multiple Sclerosis. But what they couldn’t see was the battle happening insi...

Hey. I am working with a practioner who suggested making friends with other MSers with either bowel or bladder urgencies (I seem to have both). Sharing stories. Normalise the topic. Understanding each other. And so on. Anyone?