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@rooneyleoni 

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rooneyleoni

On days when the fatigue is loud, my comfort toolkit comes out

Heavy blankets, a specific playlist, and absolute zero expectations to be productive. What is your holy-grail comfort item on heavy-fatigue days? Drop recommendations below! 🎧🛌

@Dashia 

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Dashia

Grieving the Woman I Used to Be💔🤍

Lately, I haven’t felt like myself, and honestly, I don’t even know who I am anymore. 💔 Between being diagnosed with MS, watching my body change, going through pregnancy, becoming a mother, and trying to keep up with life while battling something I can’t control, I feel like I’ve lost a part of my...

@solomon 

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solomon

What’s one little thing you do for yourself that instantly lifts your mood?

Living with MS can come with its challenges, so I think it’s important to make room for the little things that bring us joy, too. For me, it’s watching funny videos that have me laughing at my phone like I’ve completely lost it 😂, getting lost in a good anime, or putting on some great music and le...

@StacyJG 

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StacyJG

New medication

I just got put on Zeposia and amantadine. Amantadine is supposed to help with fatigue, brain fog, tremors and muscle spasticity. It’s also prescribed for Parkinson’s and for ulcerative colitis. Anybody have any thoughts or experiences with either of these medication’s?

@St1gzy 

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St1gzy

Small Scar. Questionable Backstory. 😂

Had my little facial surgery yesterday. The doctor said, “There’ll be a small scar on your cheek.” I said, “Don’t worry about that. I’m telling everyone I got it in a knife fight with a hooker in Vietnam.” 😂 The doctor and both nurses absolutely buckled. Said it was the best answer they’d ever ha...

@Trevor 

EditedLast reply

Trevor

Be your own advocate !!

I had HSCT for Multiple Sclerosis here in the UK. I was discharged from Hospital 11 years ago this Christmas. I have been in remission ever since, despite the MS Society UK telling me among others ‘not to do it, because the treatment was dangerous.’ Their actual words to me were ‘Don’t do it, it’s d...

@doflo90 

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doflo90

Anyone a UK teacher & gone for ill health retirement?

Im interested to find out how severe your MS needs to be to be granted ill health retirement? Im 50 and full time primary and its getting harder each year.

@itsemma 

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itsemma

Wellbutrin for energy

My doctor had me on Wellbutrin 15mg XL for a month and he said it would help with stimulation and energy. He had me increase to 300mg XL and I’ve been having the worst headache