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@madsr 

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madsr

Music lovers?

I’ve only recently been diagnosed, and have found throughout the journey that music has really helped me process, grieve and find strength. Do you have any songs that may have helped you, or mean a lot with your illness? I’d love to give them a listen! ☺️

@hope2021 

Last reply

hope2021

Grief of lost life

I been diagnosed with MS for 6 years and I thought I had passed my period of grief. But I was wrong. I attendee a party yesterday and I wore a dress and some low heels boots I love dancing and back in my good days I did it a lot so I thought why not try to at least. I did and I had fun. Then I start...

@SpellWolf 

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SpellWolf

I miss being able to walk…

And I miss not peeing myself. I don’t even want to go anywhere, I can’t remember the last time I left my house to do something that wasn’t a doctor’s appointment. I feel like I’m stuck in an endless cycle of grief.

@Terry85 

Last reply

Terry85

Attention

Just got contacted by someone on here trying to basically use this app as a dating site. When I asked him if he had MS he said no then asked for my snap after that I blocked him.

Finding the quiet moments in the noise.

Some days you just need to pause, take a breath, and look up at the sky. Life gets loud, work gets heavy, but stepping outside for a quick second reminds me to keep moving forward, one step at a time. Hope everyone’s having a peaceful day out there. 🌤️ Does that vibe work for what you want to shar...

New doctor and possible new treatment

So I'm going to see a new neurologist today and I want to bring up the idea of taking a new medication or treatment. I wanted to know if anyone was on new medication and has positive effects or thoughts about it?

@Lynsey1987 

Last reply

Lynsey1987

Extreme tiredness

Does anyone have those days where they really just cant function, eyes hurt to open, brain cant cope with any info, limbs hurt to lift. Do they find it affects there mood, I get into really dark places mentally when like this. One of those days today, still trying to work and have mum duties later ...

@Treesa52 

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Treesa52

Disability

I’m looking for advice on applying for SSDI. Long story, starting from 2006. They said I had MS by a spinal tap, after a third opinion… I was given the diagnosis of CIS. Years later, in 2022 I got the full diagnosis. Because of the years that has past, now I have PPMS, on a slow decline. I’m pushi...

@daveserjeant 

Last reply

daveserjeant

Cladribine / Mavenclad headaches

Hi. Has anyone had bad headaches after taking Cladribine/Mavenclad? If so, how were they different from normal headaches? How long did they last, severity etc? Did they disappear with usual pain meds? Treatment tips... Thanks in advance