Hello, does anyone here use the Peristeen system for bowel irrigation? If so, how are you finding it and have you noticed an increase in UTI's? I have been using it since October and feel like it's not working for me. I have tried the balloon and cone catheter and not sure which I find better. I ...

So I just started Ocrevus today and I know the premeds and such but has anyone else’s throat start to close and they just shoot up benadryl and wait half hour and then keep going? I’m coming from tysabri which I was one of the people who has been on it the longest without PML or JCV.. so after 13 ye...

I am immensely grateful for your help with the voting. Thanks to you, my son made it into the top 20 and even reached number 1️⃣ 🙏🏾👏🏾 Now we're moving on to the second round of voting. The goal now is for him to reach the top 15. Can we do it? With your help, definitely! Voting is free and ta...

Do people have ocrevus subcutaneously or IV?

Has anyone experienced this? Lately I have been experiencing spasms in my lower back which radiates into my hips and buttocks which is crippling. At times it so intense it causes me to collapse (not fall down). I have increased my dose of “Gabapentin” 900 mg. Additionally when that gets relieved t...

Has anyone anyone else had problems with anemia? It's been 3+ months for me. Preliminary bloodwork suggests my body isn't making enough red blood cells, but we don't know why. I have a hematologist appointment in about 2 1/2 weeks.

Hi everyone I’ve been managing my MS journey for 25+ years, but right now, I am looking for connection and outside sanity from others fighting this battle. We came home last week from an exhausting, high-temperature trip (which he planned and which triggered a massive neurological flare-up and he...

I feel like the way my legs are having spasticity, making it difficult to walk will never go away. No matter how much I exercises. Will I always be fighting the spasticity or is it something I can get rid of? I take baclofen already. I'm sick of being at 6 - 6.5 on the disability scale and been ther...

I just spoke with HR about increasing my FMLA due to new worsening of some symptoms. Mind you this is a RN in HR ... She asked if it's this a lifelong illness? Then same conversation "I have a friend with MS that does the infusions too and he's doing very well". .... If she could have seen the look ...

My Facebook is constantly showing ads for miracle cures for leg drop. It's hard to tell which ones are legitimate, if any. Have any of you found something that helps? I do physical therapy, but it only helps so much.