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@solomon 

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solomon

Can we have a completely unserious conversation today? 😂

What's one tiny thing that can ruin your mood faster than it has any right to? Bad Wi-Fi? Someone chewing too loudly? A phone battery on 2% when you need it most? 😭 Let's give our brains a break from serious conversations for a minute. What's yours?

@rooneyleoni 

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rooneyleoni

Hey everyone. I wanted to officially step into this space and say hi.

I was diagnosed with RRMS back in August 2025, and I’m still very much figuring out what this new chapter looks like. If you're also navigating DMTs, energy pacing, or just trying to make sense of a chronic diagnosis, I see you. Glad to be here.🥰

@rooneyleoni 

Last reply

rooneyleoni

The Invisible Illness

People often ask how I'm doing, and it's hard to explain that I look fine on the outside while my internal battery is sitting at 4%. Invisible illness is a masterclass in masking. How do you usually describe your energy levels to people who just don't get it? 🔋

@SmoothJoes 

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SmoothJoes

Up all night every night peeing

I stop drinking by 4 pm go to sleep by 10, wakes up every 2 hours sometimes every hour to go. Anybody else experience this?

@AVFCotterill 

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AVFCotterill

Any MS’rs run?

Hi all, I was diagnosed in 2015, hit rock bottom in 2022 and couldn’t walk more than 100m. Ocrevus changed my life and I ran my first 10k yesterday. Any other MS’rs run? Looking for inspiration to do a half marathon and to spread a bit of positivity that if I can do it, anyone can! I’m not fixed bu...

@Nephthys 

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Nephthys

Hate my neurologist, anyone else not like theirs?

This guy just brushs off everything I say.tell him, i stuck my hand in a 160° water couldn't feel it. My right leg is 2 inches bigger around then my left leg. I'm in constant pain, oh and i have episodes where i cant breathe and need oxygen. His response? Oh, your scans are fine so you're just fine...

@solomon 

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solomon

sometimes it feels like my body and brain have created a group chat without inviting me. 😂😭

One minute, I’m ready to get things done. The next, I’m standing in a room wondering why I came in there in the first place. I’m learning to laugh at some moments without pretending the difficult ones don’t exist. if your MS had a personality, what would you name it? And what would its most annoyi...

@yazmin11 

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yazmin11

Resigned from my job!

I didn’t last long (8 weeks)!! I thought I was doing okay, but they were pushing me out. Therefore, I resigned before they sacked me! It was an ideal job, charity company too!

@carmenrivera 

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carmenrivera

Relationships/marriage

Has anyone ended up getting/considered a breakup after getting diagnosed? Did anyone’s partner just stopped caring after seeing some type of improvement? In my case when I first got ny diagnosis I told my husband that if he wanted I would sign the divorce papers (I’m 28 he’s 40, Im the one who work...