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So Recent Inspiration..

Damn, did a 30 min ride with Dennis Morton this morning, and he started us off fast 95-100 rpm! Then had several rounds of 110-115, and me getting to 100 is a chore! Went back and looked, my highest rpm was 118! Feel seriously spent after that workout, but sat in the chair next to bike for a solid...

@SC81 

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SC81

Am I a fraud

I feel really weird at the minute, think I am in denial or something but my recent diagnosis doesn't feel real. I get the random numbness and tingles but I still make excuses and blame it on sitting too long or my circulation being bad. I know it isnt that but its like my brain won't allow me to sa...

@Miss420 

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Miss420

Tattoos...

I have quite a few tattoos but I have been getting open like sores either in or around them and I was wondering if any of you have experienced this or if i should look into a dermatologist? T.I.A.!🧡

@stretch5 

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stretch5

The age 55

Doctor told me when I turn 55 we can talk about stopping infussions as long as flare ups don't happen, but all this in her words is cuz of aging

@St1gzy 

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St1gzy

🎬 Right Then... I Accidentally Started an MS Podcast 😂

A little while ago I threw an idea out on here. What if there was something where people with MS could just talk honestly about what living with MS is actually like? Not doctors. Not neurologists. Not someone reading a leaflet explaining fatigue to people who've been fucking exhausted since Tues...

Baclofen

Hi has anyone had any breathing issues due to baclofen currently on 10mg 3 times per day but this past week my breathing has been horrible

@laurapacino 

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laurapacino

Mayzent/siponimod

Had rrms for 25 years now diagnosed with spms. Due to start mayzent/siponimod after being on Tysabri for 20 years. Anyone gone through something similar? And what’s been your experience?

@Cameron1986 

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Cameron1986

Ocrevus

Hi, been on the dx journey for 8yrs, finally dx after a flare up a couple of months ago. I've been offered about 6 DMT's and am swaying towards ocrevus. I have an appointment with my MS nurse on Thursday to talk through my options some more. I have been offered both the one through the stomach injec...

@Maria70 

EditedLast reply

Maria70

Vent Frustrated

It’s not until now….. since hubby can’t drive me to and from work that I realize how much MS has affected my legs. I’m independent I can take the train to and from work 👀 LAWWDDD… the tiredness just to go up the MTA stairs is soooooo DRAIINNINNG. Not all stations have elevators or escalators to ...

@LadyButterfly 

EditedLast reply

LadyButterfly

How is Ocrevus working for you?

I finally decided to start Ocrevus. A start date is TBD. I am aware of the blood work I need to give prior to starting this infusion. I understand day one is filled with observation after the infusion is given. I’m just curious how it went for others in the beginning? Side effects? I pray it’ll be...