@gingerkid75 

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gingerkid75

Struggling with Fatigue!

Hi people! I am 12 months on from diagnosis and although I have other MS symptoms such as Lhermittes, the thing that I am struggling with the most is fatigue. I was signed off work for 4 wks back in September on the advice of my MS nurse, because I could barely function due to fatigue. Whilst I was off I volunteered for redundancy as I felt it was the right time to leave to give me some time and space to recover and learn to manage the fatigue. It's now May and whilst I don't feel as bad as I did, fatigue is still overshadowing everything. I am really struggling to accept that I can't just do what I used to do. It's not a conscious choice not to accept my limitations, it's just my brain and body want to carry on as before. On days when I feel fine, I am doing too much because I think 'oh I'm fine there's nothing wrong with me, so crack on ' It doesn't register that I need to pace myself and that is what I am really struggling with. I then end up completely exhausted and symptoms are exacerbated and everything hurts. I want to get back to some kind of work, but more local and less stressful than the job I had, however, at the moment the thought of working feels impossible, because I feel different every day. Apologies for the offload, but to get to the point, does anyone have any advice on pacing and learning how to let go of how life was before? I have tried to log in a diary what I'm doing to try and see what I can change, but that falls to the wayside after a few days. I'm feeling a bit lost at the moment. P.S is anyone on here from Fife, Scotland?
@PoppyP

Hi, I too understand how it is so hard to manage fatigue with MS. I do similar, push through, max out, then crash for days. It is a case of trial and error, which, when you sound like me is hard to stomach, when you just want to get on with your life! Thinking of you x

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