@julesfyah 

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julesfyah

Treatment

Guys, anyone on Capaxone? Had a letter through the post yesterday from my consultant neurologist to me, my ms nurse and my doctor and it looks like this is the treatment I shall be taking 3 times a week when it starts. Read reviews online about injecting it and sounds as if it's quite painful which I'm not looking forward to. Anyone had any side effects?
@Stumbler

@julesfyah , I've added a "Copaxone" tag to the bottom of your post above. Select this link to access previous conversations regarding this treatment. However, you need to be aware that Copaxone is one of the original Disease Modifying Therapies (DMTs). It is one of the least effective DMTs, but it does have a couple of plus points, e.g. it has minimal side-effects and it's family planning-friendly. There are various DMTs available now, injectables, oral and infusion, which may suit your lifestyle better. Do your research so that can be an active participant in any further related discussions regarding DMTs. This is a good place to start :- https://support.mstrust.org.uk/file/DMD-Book-Final-WEB.pdf DMTs are strong medications. It's your body that you are putting these drugs into, so that you should have a say in which one.........

@ItsMewithMS

Copaxone was my first DMT after I was Dx and I was on it for 11 years from 2005-2016 as it was only one of two available at the time and the Neuro felt it was a better fit. Over that time I gained many lesions and had a few relapses but it did likely help. I did get bumps/reactions to the injections but nothing serious. Over time they became more so and my favorite injection site (inner thigh) was visibly affected (has gone away now) and as I had increasing lesions such that when I moved to a new Neuro he switched me to Rebif. I have had no visible changes with that in my MRI but had progression as measured by the disability scale. My Neuro now has me on Ocrevus about the strongest/newest DMT available hoping to stop progression while I can still walk (with a stick) over most surfaces and fine around an indoor building/flat smooth area. I don't want to give another inch on my abilities. There is a question if there is still a place for Copaxone given how many more effective DMTs there are and Dr Boster (a top Neurologist in the US that has a very active You Tube series) admits that if you are considering children or are between DMTs it is a good choice- https://www.youtube.com/watch?v=Sd69KmEpsWM Dr Boster is a proponent of using a strong DMT ASAP to stop MS before it causes damage vs the "escalation" theory that gradually increases the strength of the DMT as each one fails. The issue with that is that every lesion leaves damage that even though you seem to recover from it initially you will again be affected by that lesion as your "neurological reserve" drops. For more on that check out segments he has put out regarding "leaky pool theory" which is a good visualization for us non-medical types- https://www.youtube.com/watch?v=xYB6nAt45lA I wouldn't be worried so much about the injections as they are a bother and can give some short term bumps and pain but I'd be concerned about the long-term efficacy of this DMT. JMHO and Dr Bosters...there is a place for Copaxone. You have to decide if it is right for you...low side effects, safe in baby-making years but not as effective as other available DMTs. Good luck!