Last reply 2 weeks ago
Scared

Went to my 1st neurology appointment yesterday and no good news at all. Basically I dont have 4 legions I have 15 on my brain and one very swollen and 4 on my spine and one very swollen. He said he is not comfortable just giving me a diagnosis of MS. He feels like its possible lupus and RA. He thinks the lupus is attacking my brain, the RA is attacking my joints. He can’t be sure I have a shit load of test to do. He said this has been going on for many years and it’s very progressive. I’m scared to death because I know all this time something was wrong and these doctors didn’t really care to look. I’m scared because I dont wanna die, I dont wanna be incompetent. I just want my damn life back. I’m so depressed

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vixen
2 weeks ago

Hello @artisse45, sorry for all this torture, we can all appreciate and remember what it’s like to wait for a diagnosis. OK, so is a lumbar puncture on your list of tests? If it is MS, that is usually the definutive test. Your profile doesn’t say where you are. Are you UK? Look, you gotta hang in there, and take care of yourself. Lots of treats to get you through this horrible time. On a practical level make a list of symptoms and a timeline. Stay strong, and please stay in contact x


stumbler
2 weeks ago

@artisse45 , I would consider finding yourself another specialist. It’s not professional to share their “thoughts” with patients and sow the potential seeds of doom and despair.

It’s not fair on you and is hardly looking after your health……….


artisse45
2 weeks ago

Hello Vixen I’m in NJ and I did the lumber test and my fluids were negative but he said I do have MS but he knows it’s something more than MS so I have to go for many test

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