Practical Action
I have become very frustrated by the continuing dialogue with the NHS and all the major MS charities.We all know there is NO cure yet and no understanding of the cause of this debilitating condition. Nevertheless, the charities are always looking for money and do not address the very essential practical help they could coordinate. The NHS on the other hand seem to be relying on 'big pharma' to come up with a cure whilst ignoring the more 'left field' approaches of smaller players. Surely a change of strategy is called for?
As a newcomer to the MS community, I agree. It’s very weird to read information on a charity’s website and then attend an appointment with an MS specialist who can’t tell you anything other than what you can already read online. I feel like there is a lack of funding for studies into other approaches because the money goes into pharamaceutical studies. Not that these studies aren’t relevant (they are, we need to learn about the efficacy of the drugs available) but that NHS professionals and MS charities acknowledge that there is a lack of scientific evidence to justify medical recommendation of left-field approaches, and then do not pursue this evidence through studies! It’s a very strange situation where the patient can know as much as the doctor does about their condition.
@jamesplummer , a change of strategy would be less profitable and would not be attractive to our capitalist society. Cynicism or reality?