Last reply 3 years ago
Copaxone uk

So I had my consultation today and I’m starting Copaxone and I’m waiting for the Copaxone nurse to call to arrange a visit to go over injections etc. The ONE question i forgot to ask is how long it usually takes for them to get in touch. They’ve booked me in to the ms nurse clinic for 3 months to see how I’m getting on so I’m assuming I’ll be done by the , but any ideas?

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hels99
3 years ago

Well done!
Isn’t the Copaxone nurse the MS nurse? I’d call them if they don’t call you within a week. It takes a while before they sort out the prescription – took a couple of months in my case. Then you’ll need to see the nurse again to show you how to inject.


jessvf14
3 years ago

Thank you! No, apparently there’s a nurse from the drug company called karaoke (or that’s what it sounded like) who’ll call me to arrange a home visit, show me how to inject and all about the drug, but he’s separate to the ms nurse, I think his visit is a one off thing then I go through the ms nurses for everything after. I guess it eases their workload?


hels99
3 years ago

Interesting – well more information is better than less! 🙂


gemma87
3 years ago

Should be with you within 3weeks. Ring your ms nurse up as soon as you get your delivery date for your injections and they should fit you in a clinic appointment to show you how to inject. You certainly wont have to wait 3months. That appointment you refer to in your question is a standand appointment with your ms nurse to review your meds. When you start or change meds youl see your ms nurse every three months over the next year ?. Dont quote me exactly on all this but this was my experience. Good luck x


potter
3 years ago

When I started Rebif I had a nurse hired by Rebif that came to my home and showed my husband and I how and where to do the shots. It took a couple of weeks. Potter


hope33
3 years ago

Hi I had a call to arrange delivery of the injections, after which on delivery, appointment made through my MS nurse for a nurse from Copaxone to visit me at home for a one off tutorial, and I see my MS nurse every 3 months or so.


jessvf14
3 years ago

Thank you all. From the sound of it I’m in the hands of the Copaxone nurse then am I shall just wait for his call. Maybe he’ll bring my first supply then sort out delivery for the rest. It’s him who will be visiting me to show me how to inject etc so i’ll just have to wait as long as it takes then 🙂


samanthastyle
3 years ago

Shared solutions set me up with one of their nurses and I saw her the next week. I started copaxone on Friday and so far no injection reactions! Good luck! 🙂


julie-dave2010
3 years ago

I can’t remember exactly how it worked but I think as soon as your first delivery of copaxone is confirmed they let people who teach you how to inject know and they call to arrange to come and teach you how to inject. They then keep in touch to check you are getting on you are also given a number you can call if you are having any problems. I had karaoke he’s really nice just been to see me for a 6 month check up on how I’m getting on and coming again in another 6 months. Injecting not nearly as bad as I expected and can now inject without auto injected much easier. Good luck with copaxone I get on fine and not had a single side effect


julie-dave2010
3 years ago

I meant to say the people who come are registered nurses employed by ashfield healthcare and evolution home care services arrange the delivery of meds etc. They are employed by teva UK Ltd, manufacturers of copaxone to provide what they call the connection programme.


jessvf14
3 years ago

Thank you @julie-dave2010, that’s s big help. Neuro said he’s supposed to be really nice but he’s never met him, and I’m glad I didn’t make his name up, I’d have felt awful calling him karaoke if it was something different! Slightly nervous and worried now that I’ve made the right decision with having mild symptoms but I need to do something to try to take control. I had to do fragmin injections after I had my son so think I’d prefer manual injections to the pen because again I’d feel more in control. I’m sure I’ll feel better after my visit and can ask all my meds related questions. So glad I was told about this site.


samanthastyle
3 years ago

I’m on copaxone for mild symptoms too. Decided on copaxone since it had the least amount of side effects. It was a hard decision to go on something for something mild but we know our bodies best and we make the right decisions for ourselves. ❤️

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