@unomeche

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unomeche

Aubagio!

I live in Wales but was just wondering whether anyone in the UK has been offered it yet? I asked at my last appointment and originally I was told it would be available from 22nd April but now I've been told it could be a few more months.

Stumbler

@Stumbler

The MS Society believes that it will be available from 22nd April too :- http://www.mssociety.org.uk/what-is-ms/treatments-and-therapies/licensed-disease-modifying-drugs/aubagio It may be worthwhile giving the MS Society a call to see if they have more information. Their Helpline is 0808 800 8000.

SEF71

@SEF71

Hi @unomeche I am due to start Aubagio anytime now but have known about it since December 2013. I spoke to my nurse this week and she said they are just dotting the i's and crossing the t's now, so here's hoping it will be soon when I searched on line I found this info for it http://www.medicines.org.uk/emcmobile/File/PdfPil?fileName=PIL.28531.1.pdf&documentId=28531 And I am due to receive some info from my nurse and when I do I'll post it for you.

CurlyClaire

@CurlyClaire

Hi, I received my letter today with my blood monitoring schedule etc, ready to start. It is available now but as SEF71 said just a few last things to sort before they prescribe :-)

SEF71

@SEF71

Hi again as @Curlyclaire posted I too have received my info re blood monitoring,med collection and consultant consultations .... Feeling excited (silly I know) about getting back on meds which hopefully will get me back on an even keel after 6 months of no treatment and what seems like lots of problems.

Macattroll2

@Macattroll2

@curlyclaire you must be so excited and relieved to finally see it coming close to treatment I'm excited for you I'm hoping I'll be very soon now Aswell xx

unomeche

@unomeche

I am excited for you all. I'll check my nurse and the ms soc -they should be in the know http://www.treatmerightms.org.uk/ . It would be interesting to see how it goes, would you update us? Also Goodluck to you both, hopefully I'll be starting soon. x

unomeche

@unomeche

I've found out from the MS Society helpline that the NHS have a 3 month period before they have to start prescribing the drug so...I may have to wait until July 22nd.

SEF71

@SEF71

Hi @unomeche @Macattroll2 I rung the lady who is sorting the study around Aubagio in my area,she said they are going to start prescribing very soon,she wanted to make me an appointment to go in and start on Aubagio but unfortunately due to the rigidity of the blood tests which are every two weeks,i will not be able to start on the medication and the study till the end of August as I am away in July and August (with the family I work for) for three weeks at a time, heres hoping it will be worth the wait.

nicolafullarton

@nicolafullarton

It was indicated to me it would be available from the 22nd April (my hospital is one of the hospitals that undertook the trials), and I was really keen until they said I'd have to have my blood tested every two weeks... I'm just about to start a new job and I can't have that much time off. Bah. On with the Avonex until they bring out an oral treatment that doesn't involve 2 weekly bloods :(

edbowes

@edbowes

I started on aubagio 2 weeks ago. The freedom it has given me is unreal. I can't speak for any side effects yet but keep hopeful!!!

SEF71

@SEF71

Hi all just an update to say I finally started on Aubagio last Wednesday after what seemed like an eternity but glad I'm finally back on treatment and looking forward to the next step of my MS journey x