Starting treatment again
I just had an appointment with my Neurologist yesterday and she wants to start me back on a DMT. I was on Vumerity but was taken off it in January of this year. I have a high JCV count and she's suggested Cladribine, Ocrevus, or Kesimpta but they all seem a bit scary to me. Can anyone share their experiences with them?
@greenankle I've been on Kesimpta since July last year (prev on Tysabri, suddenly high JC count made me switch) and....it's a dream :-) really convenient, just had to get a special refrigerator to keep it in because I worried about using the family one (5 year olds LOVE leaving the door open while pondering) not noticed any side effects, only downside is i feel a bit isolated because even though it was only every 28 days, and infusion was still, well, not something to look forward to, but something different to my usual boring life! No regrets though, wish I'd switched sooner.
Hi greenankle I have been on Kisimta for 6 months. I had a side affects from the first shot was not so bad. I got a fever and I get heat sensitivity. But after a few hours it cleared. I had an MRI last week and the Kisimta is working no new damage. So I am stable. The main thing is it is working. I take the shot out and let come up to room temperature before I do the injection. Hope this helps Ian