@WillGlasgow 

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WillGlasgow

winding up full time work...

H Everyone, Somewhere between 10 and 15 years post diagnosis.... I got the big news in my late 20s, while my wife was pregnant, and my career was beginning to take off a bit. I made the subconscious (and boomer ableist influenced!) choice to aggressively push my career has hard as I could, to get as far as I could in whatever time I had with a "functioning" body//brain. No need to tell me how bad a decision this was! But, having had non MS related surgery at the end of last year, and a relapse earlier this year, my symptoms and perhaps more importantly my tolerance to pushing myself have significantly changed. Heightened brain fog, communication issues, a complete loss of memory (or at least an worstened ability to hold on to information) and energy levels that can barely get me out of bed in the morning have all brought me to the decision that I cannot keep working full time, as I have been for all my adult life. This is a really hard place to get to. I come from a family // generation where working was placed at the pinacle of identity and generally how worth is attributed and understood. I've told my employer, who has been very nice, but they've put it back to me to work out what we do next. I have no idea where to go from here. Everyday that I need to be 'in work', I can feel the duties that I'm meant to be achiving slipping through my fingers. I manage a large team and this quite clearly effects their daily lives too. I'm okay with my life being challenged by MS, but find the idea of it effecting others really hard to swallow. Has anyone, especially people in the UK, faced similar situations? Keen to get some practicle advice as to the actual steps one takes from being an employed person to a person that can't work as much. Much love Wxxx
@Tmwas

I stopped working about a year and a half ago. I spent the first two thirds of my working life working crazy hours to advance my career (and did quite well). The last third was spent respectfully declining promotions because with a young family and chronic illness I knew my health would suffer severely if I took any of them. I am not in the UK and am definitely a little older than you. Nor can I speak to your financial circumstances or the support system around you However, these are a few things I would suggest considering. 1. If you really want to keep working you could talk to your employer about possible work accommodations. I was fortunate. My employers did everything they could to accommodate my illness, The list is actually quite long These probably kept me working at least an extra 7-10 years. 2. Familiarize yourself with any employer or government benefits to which you are entitled. You contributed toward them for years. Use them if you need them. This includes any mental health resources. I was approved for long term disability benefits that should pay a significant portion of my salary until I am 65. I also applied for federal disability tax credits (fingers crossed) that could help as well. It was emotionally difficult to admit needed to access these resources but I am so glad I did. 3. Involve your doctor. My doctor was crucial in accessing LTD, the tax credits and a number of other benefits. I put off the decision far too long but am glad that I now have more time to focus on my physical and emotional well being. .