I have been set an EDSS score of 1 for years
I didn't even know what it meant, but I spoke to Swiss medica a couple of months ago regarding stem cell treatment as I limp, can't walk distance and am always dizzy when out in the "wild", wild is my word for outdoor where I watch every steps incase I fall etc, and then they told me from my letters that I was a 1, which is so inaccrate and unfair, it makes me inelgible from any meaninful help eg electro stimulation etc. Has anyone gone through this and been able to change it to reflect their situation?

Well first of all congratulations on being a 1 that’s really good but if you disagree maybe get a second opinion? I know they told me my score hadn’t changed in a year even though I think my walk is worse too but the test only has you walk a short distance.