Husband doesn’t really see the disability
Hi everyone, hope everyone is doing ok. Just wanted to ask if anyone has experienced almost blindness to your disability. I was diagnosed with rrms 2 years ago. For me, ms came after a stressful period at 42 years old. To me it came out of the blue, generally I have been ok since then, my balance is off and my walking is limited now, but I’ve still been able to hold onto a full time job as a teacher. However, recently I have been falling, eg 3 times in the past month and I get quite exhausted when cooking/ cleaning etc but my husband and kids really don’t see it and really don’t understand, i am trying my best because though this disability has come upon me, I don’t regard myself as disabled , but just want them to sort of see how difficult very regular things have become for me now. Does anyone have any golden nuggets? I have said it to them but they don’t really make any adjustments lol and things carry on as normal..

So sorry to hear about the falling and the difficulty in being seen in how draining life with MS is for you with a full-time job and a family household. Unfortunately I have no golden nuggets. Do you think maybe watching some general information videos together about why life with MS is hard could help? I remember in Japan they had this thing of having males do household chores while having a 5 kg weight strapped into their tummy to show how house work feels during pregnancy. I wonder if there is something like that for MS? 🤔🙃
On YouTube MS views and news just put out the April zoom helper meeting, it is very good and I think might help you a little, plus they have tons more you can glean from 💝 my family seems to be going through a mourning/ depression season with me and trying to figure out all the changes and the effects it is having on us all 💝