@Trishnak 

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Trishnak

Husband doesn’t really see the disability

Hi everyone, hope everyone is doing ok. Just wanted to ask if anyone has experienced almost blindness to your disability. I was diagnosed with rrms 2 years ago. For me, ms came after a stressful period at 42 years old. To me it came out of the blue, generally I have been ok since then, my balance is off and my walking is limited now, but I’ve still been able to hold onto a full time job as a teacher. However, recently I have been falling, eg 3 times in the past month and I get quite exhausted when cooking/ cleaning etc but my husband and kids really don’t see it and really don’t understand, i am trying my best because though this disability has come upon me, I don’t regard myself as disabled , but just want them to sort of see how difficult very regular things have become for me now. Does anyone have any golden nuggets? I have said it to them but they don’t really make any adjustments lol and things carry on as normal..
@jona

So sorry to hear about the falling and the difficulty in being seen in how draining life with MS is for you with a full-time job and a family household. Unfortunately I have no golden nuggets. Do you think maybe watching some general information videos together about why life with MS is hard could help? I remember in Japan they had this thing of having males do household chores while having a 5 kg weight strapped into their tummy to show how house work feels during pregnancy. I wonder if there is something like that for MS? 🤔🙃

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@Mondaygirl22

On YouTube MS views and news just put out the April zoom helper meeting, it is very good and I think might help you a little, plus they have tons more you can glean from 💝 my family seems to be going through a mourning/ depression season with me and trying to figure out all the changes and the effects it is having on us all 💝