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@Sammy92 

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Sammy92

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Hi. Hope your great where ever you are in your journey with MS. I have a question for all those on Tysabri infusions or have used it. I have been on the infusions for last couple yrs and I have been having relapses that have been ignored. Now a mri has shown new changes and they have offered me HSCT. Something that I not 100% wanting my previous MS nurse shared that he had numerous patients who have died and my new nurse had some sort same opinion, my question is has anyone come off tysabri and gone to another DMT which has actually had a psotive affect. I need advice from people who are living with MS not people who think they know how much it can affect the person in front of them
Birmingham, UK
3
@RC83
@RC83
 

I'm not in your shoes but have a read about Lemtrada or Mavenclad. https://www.mssociety.org.uk/living-with-ms/treatments-and-therapies/disease-modifying-therapies

@charliedaisy
@charliedaisy
 

I went from tysabri to ocrevus. Couple of years on each now. I’ve had one small relapse (new lesions) with each during the first couple of months, otherwise stable. I would have taken HSCT if offered a year ago, but now I’m more cautious. I guess only your neurology team can advise you as everyone is different.