The emotional toll of ms/stress & low mood etc of it
How do people manage this part?
I think having gone through the same repeated cycles with ms since diagnosis & job losses etc its instilled so many fears, stress & anxiety into me...
& ive cried so much recently
I was told to have my mri again whilst neuro team investigate etc
Its been so stressful
I need to find a way of dealing with the emotions of this
Its been stressful & upsetting
Feel like i can barely voice it to others & ppl dont hold a space or misunderstand & compare or judge ms/me
Its far different to do the journey single to as its like having noone to talk to about stuff if it gets heavy 🙊🙈 although i rarely tried to rely on him for anything
We are scattered Snowflakes ❄️, screaming into a blizzard 🥶 of uncertainty, pain, and confusion! To the outside world? We are still cute as can be, and, apparently, whining for no reason?!? Invisible diseases are horrible for outsiders to grasp! Find an intelligent, respectful, responsive, disabled person to talk with. This site has the Buddy program which pairs up newly diagnosed patients with a Buddy/mentor for six months, and kinda acts like training wheels, to get your bearings. I am also available to chat 💬, if you choose. I have been living with active MS since at least 1989. I have dealt with decades of bad docs, and straight up ableist medical professionals. I have also had lovely doctors that are still my friends, even though they have retired. There’s lots of friendly people on here, from all walks of life. I am certain you can find a person to truly understand your struggles, and they might have a trick up their sleeve to ease some symptoms?!
@FloridaSpike Thats so kind of you to comment this The ms community is honestly so lovely I did the buddy program initially into my diagnosis when facing the initial employment discrimination back then I dont think i want it again... Its just been a heavy week & felt like my siblings are being ignorant but maybe i shouldnt expect to be able to talk to them or people I know as i guess everyone has their own life to deal with Its a lonely diagnosis I don't think abled people will ever understand it. ❤️🩹