@Peej 

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Peej

Anyone else feeling lost

I feel like I've been left in the middle of the ocean with a broken life jacket and no sense of direction. It took years to get the doctors to take me seriously, they all called me either crazy, lazy or fat and blamed all my symptoms on my size and past mental health history. I kept fighting in hopes that the diagnosis would be the start of getting the help I need. Well now I've been diagnosed with RRMS, HSD, PCOS, and fibromyalgia (all over 2 years since being diagnosed) and still I get no way near the help I need. Everyday I am in agony, I'm always nauseous, have a headache or migraines daily, I can barely stand, my joints subluxate all the time and so much more; yet I still am expected to do everything for myself, if I don't I'm just seen as fat and lazy. Currently I can do at best 1 task a day for example I can cook or I can do the washing up, I cannot do both. I had a chest infection in September and since I've just been consistently flared up but even before I had no stability and flare regularly. I have been to the doctors hundreds of times at this point but its 1 in a million chance anyone will actually listen to me, I'm crying &begging to change my symptom management so I can be more active, preferably work but id be happy just to not to be wiped out from a seated task and have a better quality of life. They will hear all of this and how I used to be very active (2 jobs, college and multiple sports hobbies) will look me in the eye and say the only treatment is excersise. Actually before I can even get to the specifics of the symptoms I'm told the only treatment is excersise and I'm so confused on how I'm supposed to excersise when I can't cope with daily living tasks? I don't have family support and my only local friend has so much more to prioritize over me I barely see them. I've been denied help with getting a part time care team. I'm on the lowest pip (no mobility) so I can't afford private help. And this is only really the tip of the iceberg there's so much medical trauma and gaslighting, non of my notes are accurate, i can barely speak in appointments the doctors speak over me, i am worried one day something will be seriously wrong and they just wont listen until its too late, there's so many symptoms I've just never gotten checked out that are getting worse but what am I supposed to do when I can present myself in any way and they still will not listen?
Stafford, UK
@Peej

Also the thing is I did excersise and physio for quite a while but I am in a flare or developing infections so often any progress I do make (very little) is gone before I'm recovered from whatever is flaring up, its like a messed up time loop that gets worse every loop. I wear a mask in the odd public outings, carry sanitiser and, am isolated beyond my control despite this still get infections /illnesses frequently so even though its the only activity I can do even in a flare, swimming isn't accessible to me especially in flu season. Not that the doctor cared about that either.