I’m beaten
Today I can’t take anymore. Nothing anyone can say or do can help but if you have MS you will understand. To the outside world I appear as if everything is okay because who wants a moaner and I don’t think I have it in me to do that. I was bought up to be polite and make an effort but I can’t. To quote Marlon Brando [i think] ‘I used to be some body’ but this disease has taken everything.
I have been on ocrevus for 6 years and for some reason it has made me completely allergenic to food: fruit, lactose, vegetables. products on my skin: lotions, shampoos, conditioner, make up. My skin has developed blood spots all over. My digestion is poor.
My doctor has moved me to kesimpta 2 months ago saying that it might be easier on my body rather than two big infusions. Kesimpta monthly. But it’s an adjustment to my body - just 2 months in.
And now I have recently hurt my back and everything now hurts. I’m lying here and can not face the day. I’m tired of it all.
That’s it.
I just wanted to put the message out there. I hope ive not bought you down with my pathetic whining.
Well, shoot!! Adding injuries to this awful disease seems like a bad idea?!? Hmm, 🤔, assuming your back just needs rest and relaxation for a bit, that can be meditated into a holding space, and allowed to do what it needs to do. The longer term effects are more concerning. Do they think these adverse allergic reactions are going to be permanent? That seems excessive? Do you have anything that lifts your spirits, that your friends, or caretakers, can have arranged/delivered to brighten your spirits? 🤷♀️, just reaching for solutions, I suppose?
@Muffie Well it seems not everything is against you. I've just looked at your profile and apparently you are 126 years old! So for such an advanced age, you look amazingly youthful! 😆 You must let the rest of us know, the secret of your success ?