Good evening! I pray things are well with you all.
I was upgraded to SPMS a month or two ago. I got diagnosed with MS in 2017, but I really think I have had it for at least 30 years. This is a disease that none of us asked for and has been placed on us. I get it and understand that things could be worse. But at times I get soo PISSED OFF!! This disease controls me, and I always have to work around it.
Today, I had someone come to my house to measure for a wheelchair. I may need to start using it soon, as I have a balance and mobility issue. I have soo many doctors that it's crazy! Primary, OBGYN, Urogynecologists, Neurologist, Urologist, Hematologist, neuro-ophthalmologist, and an Audiologist
I don't want to come off as negative or complainsive. I'm sorry, but I am a realist. Sometimes I look at this disease and getting treatments like were in hospice care. Keeping us comfortable until the end.
Some have MS and live a normal life. It depends on how bad our brain damage is. I am so happy for those people. I think I am having a problem with the quality of life. Again, I apologize if I come off as a wet blanket.
The question I have for everyone is. What is it that keeps you going? You know, so you don't stop taking your medications and or infusions and call it a day?

Hi I was at the hospital today getting my Twice a year infusion! I always forget the name of it. It went good I'm hoping I can be a little better we'll see
🙏🏼❤️🩹❤️