From the heart post
So I'm a very positive individual but every since I got diagnosed in 2017 not so much Im thinking that others feel the same way I do or maybe not maybe its just me
When I was getting my infusion one day I was talking with the nurse I said something to her like when you are furthur along in your disease its like being in Hospice were being kept comfortable until its time to check out Sometimes I wonder what the point of continuing the infusions and moving on with anything
Has anyone ever thought about how having MS has affected there quality of life? this whole MS situation for me has hindered my quality of life in a big way Right now I'm going through a divorce and wonder if I will ever have another as some men don't want to deal with somone being sick Im sorry if Im coming off negaive but I just live in reality
~Me
@HonyBunch...you wrote the post while your whole soul is under attack because of the divorce. I, too, am an optimist and positive person who is affected and dealt with MS for more than 20 years. When I first found out more about MS and its future consequences, I had to make 1 choice. Choices in front of me were: 1. Position myself in a fetus position and cry and feel sorry for myself and ask "why me?" 2. Laugh in the condition's face and push forward and be grateful for everything within my life. I went through numerous infusions or self-injections, suffer terrible side effects just to push my life for one more day. I have been divorced for the last 5 years and I understand a bit of what you are going through. I am also a father, and my daughter is a great motivation for me to succeed. If we are to focus on morbidity, the whole life is a version of a Hospice. We all are going to die eventually, but what makes it interesting is the fact that we don't know when. We breath, eat and drink to survive another day. Some of us feeling better and some of us not. I suggest you listen/watch Sadhguru on YT to get a different perspective on this miraculous thing called life. Good Luck!
Thank you so much for your reply and for sharing what you did about you. I have a lot more going on, and maybe I should look into a therapist to meet with. I was never one for talk therapy, but thinking about it more and more, I am concerned about my quality of life. Is that ever a thought for you? I tried to send this just to you, but not sure how to do that. I haven't been on this site long, and am not familiar with all of its features. I looked up Sadhguru on YT what is this? I'm not familiar, I'm sorry