Am I alone?
My disability is progressing and when I tell my doctors about it I am always met with the same response. “Well you’re labs and MRI’s look stable so that’s a good thing.” I am obviously not stable if my disability is progressing. No new lesions is nice but so was my ability to lift my legs that I can’t do anymore. I miss my face not feeling numb and pulsing like a foot waking up from being asleep. I miss being able to use the restroom and hold it until I got there. I’m not stable, why am I not being heard or acknowledged?
Yeah same here, i told my consultant i dont want any more MRI scans as they are pointless. Its just progress in your MS its normal , without lessions . Sorry its frustrating i know
My MRIs and labs are stable as well for the last 15 years. My walking has been going down hill ever since. Hoping I can make it to the bathroom in time with my legs is upsetting. My Nero acknowledges my walking has gotten worse. She says you can show being stable with nothing new going on but, your curent challenges can decline and through medication and rehab you may be able to slow down progression. 😢