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Denied Rituximab by the insurance company but approved for Truxima.

After spending 3 days in the hospital for my MS and Lupus flare on high dose of steroid infusion, my insurance comp denied the Rituximab. My dr wants to appeal but in the meantime time, the pain on my legs, my head, my arms, etc are so surreal. I'm using a walker just to be able to walk, to sit and ...

@IllusiveG1 

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IllusiveG1

Feeling lonely

I feel lonely. I struggle with it every day alone. My family thinks my pain and problems are insignificant and why I don't do anything.

@jenandthezoo 

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jenandthezoo

Symptoms effecting passions

Did anyone else’s symptoms specifically impact the things they are passionate about? One of my first serious symptoms was the loss of fine motor controls in my writing hand. I’m an artist & for a while I was unable to hold a pen or use a tool. I’ve heard several stories now about other artists losin...

@alexxndria 

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alexxndria

DISABILITY BENEFITS EXPERIENCE

I’m in the process of applying for disability benefits. What was your experience like? How long did it take for approval? What was the set back that caused your denial? What tips do you have? I am currently in phase 3 of 5. They sent me an “Activities of Daily Living Questionnaire”

@DennisJeannie 

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DennisJeannie

Spinal tap

Anyone done a spinal tap? I have to have one and im worried it will hurt.
Springfield, United States

@meanna 

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meanna

Swallowing?!?

Does anyone have problems trying to swallow you food or drink? I'm having issues with it now! Am I the only one ? Is this an MS thing or should I be checked for other problems?

@DoubleR 

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DoubleR

Fatigued

Does anyone else stop to take a break while getting dressed? By the time I put my pants I don't even want to go nowhere anymore. Just tired and frustrated

@Lightning87 

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Lightning87

Muscle twitching

Hi all, I hope you’re well! I was diagnosed in 2018, was on Tecfidera for 6 years before having to come off due to low lymphocytes. Nearly a year off DMT and then started Ocrevus July 2025, I just had my 6-month full dose on Monday. Latest MRI in Sept was stable, I’ve not had any new lesions on my b...

@chloess10 

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chloess10

Newly diagnosed

Hi all, I was diagnosed two weeks ago after two years of numbness/tingling sensation in both hands. Feel relieved now I finally have an answer but nervous about what’s to come with treatment and the unknown of if and how MS may progress. Was recommended this app so thought I’d say hi, if anyone ha...