@Lester 

Last reply

Lester

Ppms

I've been diagnosed with primary progressive MS I'm 45 was very active. I know it's a question everyone will ask. I have a young family and need to try and support them by continuing to work. Is it likely I'll work until I retire. Am I likely to walk without crutches?I can't walk very far anymore. Really getting me down. Then you hear people in there 80s still managing? I'll try anything thank you for listening
@Criscross21

I am listening and I hear you. I was diagnosed in 2005 when my son was 11. Naturally, I was stunned and worried a lot about my future and ability to keep working. Short answer, God will provide a way for you. This I do believe. For me, although it was uncomfortable and sometimes exhausting, I worked though 2020…which I consider a pretty good run. (With some less stressful modifications in the last few years—took less stressful work). Then, I knew one day that it was time. So I applied for disability benefits. I am still mobile, but can’t walk very far without paying the price in fatigue and achy muscle pain. My son is almost 30 and has his own life. But I still have the same worries about being functional for my husband. So, on the good side, MS doesn’t mean that you only have X amount of time before you are in a wheelchair. Staying as calm as possible is key. Prayer and music for me have helped me live in a positive zone no matter what my circumstances. I still get down, but then I have a mental rebound. I remember that the more important feature is what example I set for my son. One day he will face trials in his life, and I want to show him how to stay calm and trust God even through something like this lousy disease.

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@Clary

Getting on a DMT could slow progression. Looking forward can be scary. I have been told to take one day at a time. Definitely worth using any aids that are needed. All the best.

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