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emlaloula
3 years ago

That made no sense to read. Not to me anyway.


Anonymous
3 years ago

Just read the article regarding the person Georgegeo and have to say if anyone believes this then i’ve just seen 3 flying saucers circling my house with elvis, Lord Lucan and Jimi hendrix as pilots. Recommend a read of the article to anyone. ?


emlaloula
3 years ago

I was about to sit there with a pen and paper (Tablet/Phone) listing my issues with this ‘article’ like I was starting some kind of literature review ?
Then thought no Emma. What on earth are you doing? Do not waste your precious energy.
I thought maybe it was just me. Glad it’s not. Something just wasn’t sitting right.
Thank you @L3301 for the reassurance.
Maybe someone else has a different view.


Anonymous
3 years ago

@emlaloula Hi fellow warriors. Please don’t misunderstand the article. It does not state that cannabis is a recommended ‘treatment’ for MS. Only that cannabis can help treat ‘symptoms’ of MS. Which has been proven time and time again. I am a member of the Consortium For The Investigation of Cannabinoids. http://www.ccic.net/index.php?home&lng=en

@l3301 “if anyone believes this” we are not talking about flying saucers (which also exist by the way). We are talking about how cannabinoids are being researched for their neuroprotective properties and how cancer and other patients are successfully treating a range full of ailments with cannabis.

Marcel Gignac is using cannabis to successfully treat his MS according to his neurologist. Are you implying that you have some kind of evidence against this? I would love to hear it. I personally treat my symptoms with cannabis as well, including vertigo, nausea, pain, depression, anxiety, irritable bowel and spasticity. If it wasn’t for cannabis i’d be on 25 different prescriptions for all these ailments. So It permits my body open to specific MS treatment only without harmful treatments for symptoms. As I always say, whatever works for the individual. You guys seem angry that Marcel Gignac is getting relief from whatever is causing him misery. If you choose conventional treatment after doing your own research (and not just taking whatever physicians tell you) then that is the best treatment for you. You can check if your doctor has his hands in the cookie jar here https://projects.propublica.org/docdollars/

Yes, cannabis has side effects, what medicine doesn’t? However the side effects cause far less impact than some of the more conventional treatments.


Anonymous
3 years ago

@l3301 I would expect your patronizing comment coming from somebody on BG12 (Tecfidera). Like I said, if it is working for you, that’s what matters most. Are you seeing positive results? The only problem I have with conventional treatment is that it does not promise a delay or halt in disease progression. If treating lesions short term with these biological modifying treatments would promise a better prognosis I would be more comfortable. However like I said, if you believe this is helping your symptoms, then I won’t reference ‘flying saucers driven by celebrities’ to insult you, and I’ll gracefully accept the treatment choices you made.

@emlaloula we were both diagnosed this year, although we’ve probably had MS for a long time before diagnosis. At least we’re fortunate enough to be at a point where a lot more effort and money is going into research to understand what is causing MS in the first place and keep improving treatments. Keep positive and don’t jump into an ocean of sharks blind too fast.

I don’t advocate taking or not taking treatment for MS. I am strictly non-bias to whatever a person needs to do to improve quality of life. That’s the whole point of all this.


emlaloula
3 years ago

Hi @Georgegeo I think I may have been the one misunderstood and this may be my fault.
I am aware of the therapeutic benefits of cannabis some people find for symptom relief in many health conditions,
My problem or should I say, disappointment was the failure of the article to support this due to omissions of details that some including me may find relevant. And some that leave questions.

Does that make sense?
Happy to get out my Pen and paper if needed ?


Anonymous
3 years ago

@emlaloula I’m more interested in the fact that cannabinoids have neuroprotective qualities and help with pain among an array of other symptoms. The ‘writer’ of the article could use a little more education in referencing and wording his articles better. Are your complaints about the use of cannabis? Or about how the writer wrote his article? In any case I would love for you to take out your pen (tablet) and engage in a formal conversation. All I ask is that we don’t patronize or insult each others views or opinions. We can find contradiction in anything anybody says, instead of wasting our time being confrontational as you said, let’s work together to try to find comfort in this shitty diagnosis we were given.

In closing, I will go have some cannabis now because it relieves my pain and helps me with my symptoms, and that’s all I could ask for from any treatments currently available for ‘symptoms’ of our disease.


emlaloula
3 years ago

@georgegeo no complaints about use of cannabis. Problems with way it was written.
I am happy to get pen to paper.
Just bear with me. I’m mid relapse.

Don’t worry, I am not a person to patronise anybody. I think some people can feel patronised even if it’s not the intention of the patroniser (is that even a word ?)


Anonymous
3 years ago

If anyone cares to scrutinize the article in 2014 fully and come to the conclusion that the person concerned comes across as a honest sort so be it. My view of the article was not about how medical, or no thc cannabis oils taken, vaped work for spasticity, or relief for m.s sufferers was untrue. The mention of an aggressive type of m.s which is only diagnosed on autopsy is one thing, then goes on to state finally he became certified in Cannabinoids In Clinical Practice through the ACE program, and he smoked weed from the age of 12, which most people would see a link, but not all. I would like to know what 25 scripts you’d need, without anything else to help too Georgego?
In regards to my own way with m.s I’ve had it it 13 years that’s rrms diagnosed and confirmed. I started taking techfidera 18 months ago due to a relapse, and thinking of the future,so that’s over 12 years if you include the time taken for diagnosis, and that done on nothing. Amazing stuff. Maybe in reality i’m lucky m.s has not been as harsh on me, so that’s not being patronising in any format it’s called being a realist. In regards to ufo’s being real, much the same as ghosts, your either a believer, or non believer, it’s not hard to guess what I am, and what you are.


Anonymous
3 years ago

@emlaloula take your time. I hope your relapse doesn’t bring you too down. Keep fighting warrior. When you care to talk, I will listen.


Anonymous
3 years ago

@l3301 first of all 13 years diagnosed and confirmed, you are a veteran MSer, i’m a newbie. So I won’t judge your choices in treatments and lifestyle as only you know what you’re going through. Literally everybody’s neurological biology is different and not everybody with MS experiences the same symptoms or disease progression. What were you doing for 13 years before starting DMDs? Did you change anything in lifestyle post diagnosis? Such as diet. Did you ever smoke or ingest cannabis?

As for the writer of the article, I don’t vouch for these people, I guess you are right about some of the intentions of the writer to gain more readers, he got us didn’t he? He did good if he was after clicks, that’s what he’s really after, he doesn’t care about MS. Whether an aggressive MS as such does exist (which every form of MS is possible) or whether Marcel Gignac is a bullshitter, the point I take from the article is that cannabis helps with symptoms of MS. I don’t know if i’d go as far as saying cannabis is a cure, but it definitely is a symptom treatment.

How do you not believe in UFOs? That was a conspiracy 20 years ago, it is mainstream knowledge now that they do exist. Here is a clip of the former minister of Canada declaring that extraterrestrials exist for your entertainment


Anonymous
3 years ago

Anonymous
3 years ago

I don’t 100% blindly believe what the former defense minister and acting prime minister of Canada is saying however I question how so many high profile people such as this have come out on disclosure. Many with no incentive (like a book), some former military personnel come out on their death bed. I always question, anything is possible. We live in a dimensional space and we know nothing of what is going on outside our fish bowel. People who don’t believe in things that we don’t know anything about are like the ancients who thought lightning was caused by God being angry at their first born child. At least our (homo sapiens) minds are evolving out of ignorance at an exponential pace. “All I know is that I know nothing” (another Greek quote). I am just a tiny living organism in the grand scheme of things converting oxygen to co2.


Anonymous
3 years ago

With the site being a hub for people to gain information, and support and a whole host of other stuff from why not just put across a point that cannabis provides relief to you, and tell us what type of it you use? You’ve told me already your prescribed naibilone, but no mention of the other oils, plant strains you use.
There’s plenty of other forums in regards to other world disputes and conspiracies to reach your own utopia Georgegeo so i’ll use them, if I need their input on the mater.


Anonymous
3 years ago

We’re talking about it now, so obviously the article spread awareness of cannabis helping with pain.
Instead of talking ‘off topic’ about how you don’t want to talk about anything off topic, why don’t you spend all that typing answering my questions from that same post that have something to do with MS.

“What were you doing for 13 years before starting DMDs? Did you change anything in lifestyle post diagnosis? Such as diet. Did you ever smoke or ingest cannabis?”

After you offer some courtesy of help instead of thinking of ways to sound witty, i’ll give you my list of strains.


Anonymous
3 years ago

Talking about what exactly the article you put forward Georgegeo ? Nothing changed in any regards apart from the fact that m.s progressed for me to warrant picking a dmd to go onto easy for most to comprehend. I won’t put my run up to this being down to anything other than that’s the paths it’s run, as simple as that.
You seem to be ducking a few simple questions i’ve asked before on your posts Georgegeo why not elaborate more to me.


Anonymous
3 years ago

“I won’t put my run up to this being down to anything other than that’s the paths it’s run, as simple as that”. There is a reason why it ran that path, a reason you seem to be ducking, your lifestyle, environment and diet play a major role in disease progression. If you believe it doesn’t, good luck to you.

Why should I answer questions when you answer none? Courtesy is a 2 way street.


Anonymous
3 years ago

Nevermind Georgegeo no harsh truth is never as nice, as a comfortable lie. ☺


Anonymous
3 years ago

Ok @l3301 thanks, I’ll choose not to waste brain cells trying to decipher your analogy. Be well and good luck on your journey.


stumbler
3 years ago

@georgeo and @l3301 , before this becomes like a UKIP gathering, can I just draw your attention to the Forum’s House Rules, https://shift.ms/house-rules .

In particular :-

Keep it friendly.
You’re bound to come into contact with people with different opinions to you. If you disagree with someone, please do so in a calm and respectful manner. We will remove any member who we feel is being harassing, defamatory, abusive, threatening or aggressive. That’s not what we’re about. There’s no place for it here.

No two the same.
We expect people to talk about medical experience and drug choices, however we will not tolerate promotion of one drug or therapy over another. Feel free to provide information, but please let people come to their own conclusions. Please don’t tell people that they have chosen the wrong treatment, or that yours is best.

Thanks guys. 😉


Anonymous
3 years ago

@stumbler I totally agree with the terms and conditions 100%

Seems @l3301 gets a kick out of instigating provocative conversation. All is good though. Be well.


Anonymous
3 years ago

@stumbler I’m from Canada and I enjoy watching UKIP debates, especially when Farage is involved.

Have you ever tried cannabis treatment for any of your symptoms? Does UK prescribe cannabis products for pain as they do here?


stumbler
3 years ago

@georgegeo, Cannabis is still an illegal drug in the UK. Although, the authorities are adopting a “more pragmatic” approach to possession and personal use.

Supply is therefore a problem, unless you grow your own.

There is Sativex, but that has not been approved for use over here. The concept of Medicinal Cannabis/Marijuana hasn’t yet been embraced over here.


Anonymous
3 years ago

That is a sad reality for MS patients suffering from pain.

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