Last reply 1 month ago
What a great Platform ☸

Has anyone never had a days rest?. Always something with my MS spasms pain bladder optic nerve inflammation in the nerve so on so forth never-ending since I was diagnosed I was wondering is this common with MS

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


paul_hennessy
1 month ago

Sorry about the spelling mistakes and grammar I use the microphone and been broad Scottish Edinburgh accent sometimes the words don’t come out correctly or if my mouth goes into spasm sorry hope you understand


vixen
1 month ago

Hello @paul_hennessy, yep, it’s a daily grind alright! Yep, music is indeed a saviour (as from your profile). Love electronica/dubstep/Kraftwerk. Symptoms are daily, I try to ignore them!


paul_hennessy
1 month ago

I have never took any genetically modified treatments from neurologist in 20-years they put me on very very strong opiates morphine I hate the morphine I now get cannabis medicine and vaporize I noticed a big difference in my mid my stiffness and everything else,it obviously helps circadian rhythm is your body clock THC and CBD T work wonders especially high dose of THC is not right that patients that suffer from chronic pain have to buy this wonderful medicine rather than taken gabapentin and morphine and all the genetically modified treatment drugs yes it is very hard I have noticed a big difference at least sixty 70% since I started taking my medical cannabis on a vaporizer still have my problems and difficulties but they have subsided dramatically, yeah music is your best friend always make you happy never argue with it just make you feel good peace kind regards Paul


watsoncraig
1 month ago

I hear you @paul_hennessy I hate the speak to the machine services certain companies use, they just don’t get how we speak.
It’s loch not lock
Ask not aks
House not hise
Add MS to the mix and I would rather talk to my carpet


paul_hennessy
1 month ago

What meds you on ✌talk to the carpet 😀


steve_greenway
1 month ago

The only relief I get from my symptoms is when they give me Steriods. Trouble is thst only lasts a few days after the course ends. And then all my symptoms return!

But after I ended up in hospital because they put me on the DMD Tecfidera, and it reduced my immune system so much that a small cough turned into Sepsis. So that and because of Covid19 they won’t give me steriods.


paul_hennessy
1 month ago

Thank you ✌


bernadette
1 month ago

@paul_hennessy, what a great question, mostly I would say no you don’t get a day off.

Looking back over more than 4 years of it honestly I have had a handful. They are so rare that I noticed and appreciated them. They came between relapses and also after a treatment day, e.g the day after my first Tysabri infusion I felt normal. To others I look the same anyway which is very irritating. Do look out for them as you will get some…but you have to notice them when they come along.


itsmewithms
1 month ago

Well, what I think of is “It’s always something”…as coined by the famous Rosanne Rosanna Dana of Saturday Night Live in the US…I go and watch some of those old clips and crack up…at least we get some variety? ;-0

I am on Ocrevus and my Neuro prescribed me Amantadine for fatigue as I get tired after about a half hour of physical activity. It hasn’t helped that so much but my afternoon and evening muscle spasms in my legs are much better so I think that is a win!

At least it is never boring ;-0

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.