Last reply 1 month ago
Virtual Neuro / MS Nurse consultations?

Hi everyone, I’m wondering whether anyone on here has had any virtual consultations with their Neurologists or MS Nurses? Either over the phone or even more excitingly over a video call of some sort?

I’ve not had one myself, but I wanted to know what experiences people may have had, positive and or negative.

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watsoncraig
1 month ago

Hi
Got a virtual call from my MSNurse on Friday coming


mikemanc
1 month ago

@watsoncraig how did you find it? Was it any different than your normal visits? Would you do it again?


amelialily
1 month ago

I would love one! haven’t heard a dickie bird since February when I had a relapse. Neurology services round here are rubbish!.


andyg
1 month ago

I’ve had video appointments with both my consultant and nurse. They went well with them answering all my questions and we achieved everything that was set out I think. I’ve so got my nurses phone no and email to keep on touch if I need to and she does seem very responsive. I’ll actually get to see her in person in a couple of weeks when I go for my first treatment though how exciting. 😁


mikemanc
1 month ago

@amelialily I’ve only had minor contact as I needed to have an MRI arranged after finishing Mavenclad. My MS Nurse got redeployed to help with other duties for the pandemic, so I imagine something similar might have happened in your area


mikemanc
1 month ago

@andyg That’s great to hear, glad it worked out well for you. What are they going to be putting you on?


jennymay1548
1 month ago

@mikemanc I had my first appointment which was video call and I actually really enjoyed taking to my new nurse 🤘🏼 It lasted just over an hour which wasn’t bad


andyg
1 month ago

@mikemanc I’m going to be starting on ocrelizumab infusion. It was recommended by my nurse. I didn’t think they would go straight in with one of the higher level treatments but she thinks that hitting it hard is the best way forward.
I have to say that my experience of the team so far is really positive. I’ve had symptoms now for nearly 6 months as my GP thought I had a bit b12 deficiency but since my diagnosis about a month ago things have moved quickly. I’ve had steroids for my symptoms which have helped and I start my DMT in a couple weeks. Can’t fault it so far.
Hope your experience is a positive one too.


mikemanc
1 month ago

@andyg yeah it’s all about hitting it hard and fast. Glad you managed to get on the right track so soon. I’m doing well thanks. I’m nearly 12 years diagnosed now and on my 4th treatment. Thankfully not had a relapse for a very long time and the outlook is looking great! Hope you have a smooth ride from hereon out


mikemanc
1 month ago

@jennymay1548 an hour, wow! Hope it wasn’t anything to heavy to be talking for that long


itsmewithms
1 month ago

That is how my Neuro handled my spring visit. We basically did much of what we do in his office but through my computer. I was glad that I watched Dr Boster’s video he had put out about what to expect: https://www.youtube.com/watch?v=yNv7PBmwE_k&t=7s

One thing he didn’t mention, and I wasn’t prepared for, was that my Neuro would want to watch me walk and I didn’t have my PC set up anywhere that he could see me walk for about 5 feet and it would have taken some time to move it to a different area. Next time I should set up in the living room or exercise room instead.

I think the MS society also had a helpful article of video on televisits. I bet even after this pandemic is over a lot of Dr visits will be converted for patients that it is too difficult to get around as it is much easier on them and Drs prefer as they say people seldom miss the appointments and are on time so everything runs much smoother-

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