Last reply 9 months ago
The walton centre liverpool

Hello everyone,
I’m not sure if anyone can help but I’m going to be seeing a specialist for a 2nd opinion at the Walton Centre Liverpool and wondered if anyone has any experiences with good empathetic consultants who will listen please. I’ve had not a good experience with the neurologist I saw and don’t think I could handle a repeat experience as I have done.
Many thanks x x

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9 months ago

Dr Martin Wilson he’s my consultant he’s fab and good luck x

9 months ago

Thanks @karlsohare, have you ever seen or heard of a professor Young?

9 months ago

@mavisdavies iv heard of him or seen him seen huda once and Jacob once also

9 months ago

@karlsohare Oh right thanks.

9 months ago

I’ve seen both, neither as good as doctor Boggild was back in the day

Wilson was ok, apart from when he used google…

Prof Young is a a nice lady who seems very knowledgeable

But also control your expectations- if u don’t have any, you won’t be disappointed!

For complex movement issues I saw Dr.Alusi omg what a brilliant dr n woman.

The cafe does the best honemade gravy eva FYI lol
Good luck

9 months ago

I had a set of issues through June that, apparently, weren’t due to an active lesion. Usually I would have a radical onset of an issue, they could see a bright lesion, they would slam me with a ton of steroids and it would go away. Seems this time that wasn’t the case. My neuro said he suspected I was transitioning to SPMS. What I had done in the past would no longer be effective and my current DMT (Rebif) would no longer be effective. Most RRMS transition at some point, I just didn’t want it to be now…or ever. He recommended a switch to Ocrevus and if I wanted help supporting a disability claim or case that he would sign anything.

He is great and a knowledgeable but it just wasn’t the message I wanted to hear, from anybody, ever. I now acknowledge this was a little unreasonable of me 😉 So- just to confirm I requested a 2nd opinion from our leading medical facility in the US, the Mayo in Rochester Mn. It is only a couple of hours from my house so I stayed with a friend in the area and went to appointments with various member of their staff through an entire week.

The most helpful session was with a MS nurse that talked with me over an hour. She wanted me to start at the beginning…what were my first symptoms and when. How was my MS diagnosed, when and by whom. When did I notice other symptoms, what all symptoms do I have, how many attacks have I had, when and if possible to determine what triggered them. To prepare for this I had as much as possible written down in a note book that I could refer to when she pressed for details.

I also had a list of questions/issues that I definitely wanted answered that week. By being organized and really know what I wanted out of my time there, and letting her know what I needed, I felt satisfied with the results. They basically seconded my neuro’s assessment so while there was no change in treatment plans or direction I did feel much better about the path.

I think too many of our appointments are for too short of a time. We are pressed into a one hour appointment and sent back out onto the street. That just isn’t all we need sometimes. Knowing I had whatever access I needed into experts for an entire week gave me great peace of mind. In the end I spent a couple of hours with that nurse and the Dr that came in at the end of the session, an hour session with a Neuro Phys and a wrap up hour with the Dr again at the end of the week. Being organized for the sessions, taking notes during the sessions and coming home with a plan was just what I was looking for.

9 months ago

My consultant is Prof. Young. She is lovely, she listens intently to what you tell her, she’s very knowledgeable and understanding and has answers to questions without hesitation. That said, I’ve only seen her once, at time of diagnosis. She always seems to be “away” and you end up seeing one of her team, which is not the same. Good luck. X

9 months ago

Hmm I thought we were not mentioning names of docs in the forum but as you’ve all said nice things we probably don’t need to worry 😀

9 months ago

Thank you everyone I’m just apprehensive after encountering an unempathetic neuro as tbh he knocked me for six and don’t feeling like I could take it happening again. I ha e made notes of my medical history, symptoms and had what I thought were good questions but if anyone has any suggestions of good questions that would be good. I’m hoping at my second opinion I’ll get a lumbar punchure or other tests. Thanks for the gravy info I’ll have to try it. 😋😋😋

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