I know there’s already a conversation about pretty much this topic on here, but it’s from a few years ago, so I’m wondering if people’s thoughts have changed.
I am not pregnant, but if hubby and I take active steps (ha!), I might be sometime next year. I am on Tysabri, and I love it – it has halted a rapid decline in my highly-active MS.
My neurologist does not want me to come of Tysabri for anything (barring an even better drug / cure!). He says it’s my choice, but if I came off whilst pregnant, I would likely relapse, and no longer meet the criteria in my country to get back on the drug (or any publicly-funded alternative).
All we know at this stage is case studies from babies that have been exposed to Tysabri whilst in utero, and the only documented thing that happened to those babies was that some were born slightly anaemic, and this self-corrected.
I am in the position of having to weigh up a basically known risk to me (lack of qualification for medication, thus definite disability), and an unknown possible risk to baby.
Writing this out, it feels obvious that it would be crazy to take an action that would result in a mother to become further disabled. But I still worry; I wouldn’t know how to forgive myself if my actions resulted in harm to my child.
Eh… I guess I’m asking if anyone else is in the same position, or has made the choice to continue being on Tysabri whilst pregnant. It is all very confusing. Surely my (highly risk-adverse doctor) wouldn’t let me do it, if it was too unsafe…