Last reply 1 month ago
Symptoms

I had my first ocrevus infusions in jan/feb and since then havent had any symptoms at all it’s as if I don’t have MS but every now and then I may get some tingling or very slight twitching does it mean its relapse or am I still in remission?

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itsmewithms
1 month ago

I keep an abbreviated “MS Diary” of unusual symptoms or feelings in a word document just noting when something started, how much it impacted me, etc so I can print out the sheet and bring it to my next Neuro appointment or if symptoms persist or worsen I have a record of when they started and progressed.

Any time I have something new that last for 24 hours I am supposed to report it in. Little twitches and tinglies (I get those) aren’t really like that. I didn’t realize they were even really MS until I discussed them with a Neuro and they confirmed they are forms of MS Spasms and Spasticity.

There are some Rx that help manage these symptoms if they are really bothersome. I have taken Gabapentin and Gralise but are giving them a bit of a break right now and preparing for my first full infusion of Ocrevus in a couple of weeks-


stumbler
1 month ago

@georgia_roberts , the Ocrevus is your insurance policy for the future. There may still be some historical, residual damage from previous relapses.

This damage can well cause these types of symptoms. It may be your body’s way of letting you know you do have MS and that you need to rest more and/or have some quality sleep. It could also be the result of some stressful event presently in your life.

Of course, it could be your body’s reaction to the Ocrevus, which should quickly settle down as your body adapts to the new therapy regime.

So, “listen” to your body” and take care.

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